Tag: Podcast

Des “mini-podcasts” à écouter [en]

Après l’introduction d’hier (enfin à l’heure de publication, c’est avant-hier), venons-en au menu principal: une collection de podcasts en série limitée, type documentaire en x épisodes, surtout en anglais (parce qu’il y en a moins en français, tout simplement). A écouter, bien sûr. Je ne les ai pas mis dans un ordre particulier, juste comme ça vient.

Mon corps électrique
Après un accident suite auquel il se retrouve tétraplégique, Arnaud prend part à une étude médicale dans l’espoir de retrouver un peu de mobilité dans son bras gauche. En même temps journaliste et sujet, il nous emmène avec lui au fil de sept épisodes pour nous questionner sur la médecine, le handicap, l’espoir, les limites, le deuil, le corps, la vie. (Voir aussi mon article Mais sérieux, le suivi psy?)

Soleil noir, autopsie d’une secte
Si vous avez mon âge ou plus, vous vous souvenez de l’Ordre du Temple Solaire. Ce podcast revient sur cette tragique histoire, en détail, et ce faisant, montre à quel point tout un chacun peut se retrouver victime d’emprise. Glaçant et fascinant.

Précipice
Sept épisodes. Sept vies qui basculent. On peut voir ce podcast somme un prélude stylistique à Mon corps électrique: l’épisode 7, c’est Arnaud.

No Easy Fix
Trois épisodes sur le sans-abrisme, l’addiction, et la réalité du parcours pour sortir de la rue à San Francisco.

Scripts
Ce podcast explore comment l’explication “physiologique” est devenue dominante aux USA pour la santé mentale, et ce que ça a eu comme impact sur le rapport qu’on a aux médicaments psychotropes. Egalement en trois épisodes.

The Missing Cryptoqueen
Dans le genre True Crime qui n’a rien à envier à un triller fictionnel: douze épisodes d’enquête sur une crypto-arnaque à grand échelle menée par une charismatique entrepreneuse qui finit par se volatiliser.

S-Town
J’ai écouté ce podcast il y a longtemps et je ne me souviens plus clairement du contenu. L’impression qu’il m’a fait, par contre, est bien clair. C’était prenant, intriguant, surprenant, et très bien raconté.

The Kids of Rutherford County
Quelque part aux USA, on met en taule des gosses aussi jeunes que 8 ans pour des bagarres de cour de récréation. Comment est-ce qu’on en est arrivé à ça? Et qu’est-ce qu’il a fallu pour sortir de cette dystopie?

The Preventionist
Amener son enfant à l’hôpital pour un commun accident domestique, une chute par exemple, et se retrouver non seulement accusé de maltraitance mais perdre la garde. Un cauchemar parental qui se répète année après année dans un coin de Pennsylvanie. Quand la protection de l’enfance finit par briser des familles innocentes et traumatiser ceux-là mêmes qu’elle est supposée protéger.

Un aparté, à ce stade: vous allez vous dire que je n’écoute que des trucs glauques et déprimants. C’est peut-être un peu vrai. Ce qui m’intéresse dans toutes ces histoires, c’est l’autopsie de systèmes qui dysfonctionnent. Comment les bonnes intentions créent-elles l’enfer institutionnalisé? Comment des personnes se retrouvent-elles prises dans des rôles où elles contribuent à rendre misérable la vie d’autrui? Que faut-il pour réparer nos systèmes défectueux, qu’ils soient politiques, médicaux, administratifs, sociaux, politiques, ou autre? Comment réussit-on (ou échoue-t-on) à réparer ce qui semble irrémédiablement cassé dans notre monde?

The Good Whale
Vous vous souvenez de “Sauvez Willy”? Derrière le film qui a ému les coeurs, il y a la vraie histoire, nettement plus compliquée, de Keiko – l’orque que l’on voit dans le film. Dans le genre enfer pavé de bonnes intentions, on est pas mal.

The Cat Drug Black Market (partie II, partie III)
La PIF est une maladie auparavant incurable chez le chat. C’est la maladie qui avait emporté Safran. Depuis quelques années, un traitement existe – efficace, mais disponible uniquement au marché noir. Des vétérinaires, mains liées par l’absence de traitement autorisé pour cette maladie sinon mortelle, se retrouvent à “suggérer” à leurs clients d’aller chercher de l’aide dans des groupes facebook. Ces trois épisodes retracent l’histoire de ce traitement, des communautés qui ont sauvé des milliers de chats, et de comment on s’est retrouvés dans cette situation abracadabrante.

Articles of Interest
Une mini-série sur les vêtements que l’on porte. Autant les questions vestimentaires m’intéressent peu, autant j’ai trouvé ces épisodes fascinants. Ce n’est pas étonnant, puisque cette série vient de 99% Invisible, un podcast qui a le don de rendre passionnants des sujets qui de prime abord peuvent paraître bien fades. AoI est par la suite devenu un podcast à part entière.

Master: The Allegations Against Neil Gaiman
Un auteur populaire et adoré est accusé d’abus sexuels par plusieurs femmes. Il nie en bloc. Une enquête dont j’ai apprécié la nuance, sur un sujet extrêmement inconfortable. (Je note juste là que Tortoise a d’autres séries d’investigation, je vais les mettre dans ma liste à écouter!)

Serial (saison 1)
Le podcast qui a lancé le genre, en 2014. Du True Crime pur et dur: Adnan Syed est derrière les barreaux depuis l’âge de 17 ans, accusé d’avoir tué Hae Min Lee, sa camarade de classe et ex-copine. Il clame son innocence, certains le croient, d’autres pas. La journaliste Sarah Koenig découvre que l’histoire est nettement plus compliquée que ce qu’il y paraît de prime abord.

Et ici je m’interromps à nouveau. Serial a lancé le genre, et continué. J’ai cité ci-dessus S-Town, The Kids of Rutherford County, The Preventionist, The Good Whale – tout ça, c’est Serial. Mais je découvre en faisant ce listing que suite au rachat de Serial par le New York Times, tout un tas d’épisodes de saisons passées sont maintenant réservées aux abonnés. Pas cool. Du coup, je vais bricoler un peu pour vous.

The Trojan Horse Affair
Le lien ci-dessus ne mène pas à la page officielle de ce podcast, mais au moins, il vous donne accès à tous les épisodes. Vous l’aurez deviné: une production Serial. On se rend cette fois à Birmingham, sur les traces d’un scandale qui a secoué l’Angleterre dix ans auparavant. Lettre anonyme, islamophobie et théorie du complot.

The Retrievals
Aussi une production Serial. Deux saisons difficiles à écouter sur la non prise en compte de la douleur des femmes dans le milieu médical. La première nous plonge dans une clinique de PMA où durant des années, une infirmière piquait dans le fentanyl utilisé comme antidouleur pour les patientes durant les interventions – le remplaçant avec une solution physiologique. Vous imaginez les conséquences pour les patientes, mais peut-être pas à quel point le monde médical est construit pour ignorer une femme qui dit qu’elle a mal. La deuxième saison porte sur les césariennes, et est plus porteuse d’espoir, car elle nous raconte comment une personne a pu mettre en route une véritable prise de conscience à l’intérieur de sa profession et faire bouger des pratiques médicales désuètes.

Dolly Parton’s America
En écoutant ce podcast, j’ai découvert la femme extraordinaire qu’est Dolly Parton. Je n’avais aucune idée. Et c’est possible que vous non plus.

Dead End: A New Jersey Political Murder Mystery
Le podcast a pris son envol et changé de nom, mais la première saison se penche sur le meurtre des Sheridan et les machinations politiques qui y sont liées.

The Making of Musk
En fait la 6e saison du podcast Understood, ces 4 épisodes nous racontent les origines biographiques et idéologiques d’Elon Musk. Eclairant.

The Disappearance of Nuseiba Hasan
Comme le podcast précédent, celui-ci est également une saison d’un podcast plus large. La troisième saison de Conviction, précisément. C’est chez Spotify, donc quasi impossible de faire un lien propre vers la saison, d’où le lien ci-dessus sur le premier épisode. Une enquête sur la disparition d’une femme que sa famille signale… des années après sa disparition.

Tiny Huge Decisions
Deux amis, Mohsin et Dalia. Ils sont les deux mariés. Elle a eu son premier enfant récemment. Lui souhaite également fonder une famille, avec son mari. Une discussion délicate, que l’on suit au fil des épisodes, où ils réfléchissent, ensemble et séparément, à une décision lourde de conséquences: va-t-elle lui proposer de porter son enfant? Ce podcast aborde avec finesse la question de la gestation pour autrui, mais pas que. Amitié, dialogue, religion, homosexualité, couple… la palette est large. Les protagonistes sont attachants, lucides, et courageux.

The Protocol
Une reportage en six parties sur la façon dont on approche la question de la transidentité chez les jeunes, enfants et ados, partant d’un protocole hollandais dont on suit l’application et l’interprétation outre-Atlantique. Un traitement très nuancé d’un sujet qui a tendance à polariser.

Pour terminer, deux recommandations un poil à part. Will Be Wild, d’abord, une enquête sur la genèse et la préparation de l’assaut du Capitole du 6 janvier. Malheureusement, l’intégralité des épisodes n’est plus disponible sans abonnement payant. Ensuite, les mini-séries de On The Media, podcast que j’écoute depuis des années. Au fil du temps ils ont produit des mini-séries sur tout un tas de sujets, allant de la pauvreté à l’histoire de la radio conservatrice. Ils en valent tous la peine.

Voilà, je crois que vous avez de quoi vous occuper avec tout ça!

Les podcasts et moi [en]

Les podcasts et moi c’est une longue, longue histoire. Pour la petite histoire, je connais personnellement (déjà à l’époque) une des personnes-clés impliquées dans l’invention de ce mode de distribution du contenu audio. Comme pour WordPress, Twitter ou Instagram, c’est marrant de voir ces médias ou plateformes qui sont si “grand public” aujourd’hui et de me souvenir du monde où ça n’existait pas, et de les avoir vu naître et grandir.

Ah, nostalgie… Les podcasts, j’ai donc découvert ça au fur et à mesure que ça s’est mis à exister, même si, visiblement, en 2005 je n’étais pas convaincue. En 2007 toutefois, après avoir tâtonné à quelques reprises avec la publication audio/vidéo sur mon blog, j’enregistre avec une amie une poignée d’épisodes: Fresh Lime Soda. Puis assez vite, je me suis mise à écouter énormément de podcasts. C’est encore le cas.

Le podcast, au début, c’était des enregistrements de gens qui parlaient. Je sais qu’un des premiers que j’écoutais, c’était This Week in Tech (TWiT). Je me souviens du choc que j’ai eu quand j’ai découvert Radiolab: c’était construit, monté, recherché – de véritables documentaires audio. Une révélation. Je pense que c’était en 2008 ou 2009. C’était en tous cas assez tôt pour que je me retrouve rapidement à avoir épuisé tout leur back catalog. En 2010, je rajoute un deuxième podcast à mes habitudes d’écoute: On The Media. Quelque part aux alentours de cette époque, je découvre dans un tout autre genre The Savage Lovecast (18+ je vous préviens). Puis c’est l’explosion de ma liste d’écoute, et je me retrouve rapidement à ne plus réussir à écouter tous les nouveaux épisodes des podcasts auxquels je suis abonnée à mesure qu’ils sortent.

Mon but aujourd’hui n’était en fait pas de plonger dans des réminiscences historiques, mais de vous donner une liste de recommandations de podcasts à écouter. En particulier, de podcasts “série limitée”, souvent des enquêtes ou des documentaires sur un sujet précis, qui font x épisodes et c’est tout. Le premier à avoir lancé le genre, à ma connaissance, c’était Serial. A la sortie de la première saison, en 2014, “tout le monde” en parlait. Le podcast est encore actif, et il vaut bien la peine d’écouter toutes les saisons.

Pendant très, très longtemps, je désespérais de trouver des podcasts en français dont la qualité, tant pour ce qui était du contenu et de la production, pouvait rivaliser avec les podcasts américains que j’avais l’habitude d’écouter. On m’en recommandait, mais la posture journalistique classique du narrateur soit entièrement absent, soit “objectif et neutre”, désincarné, ça me hérissait le poil.

J’ai fait des études en sciences humaines. La notion d’observation participante était centrale, on mangeait la phénoménologie au petit déj, et en plus de ça, je me suis construite toute jeune adulte déjà en tant que blogueuse.

Le blog, au-delà du format de publication, c’est une culture de la parole publique dans laquelle le “je” qui observe, expérimente et interprète le monde fait partie intégrante du discours qu’il produit. Sans lui, rien ne peut être pensé ou dit – il serait malhonnête de vouloir l’invisibiliser. Et même s’il peut vouloir tendre à une certaine objectivité, ce locuteur-narrateur colore inévitablement de son regard singulier tout ce qu’il a à dire. Rendre compte de cette subjectivité en lui donnant une place dans le texte produit, c’est au final offrir au lecteur plus de clés pour en traiter le contenu, pour l’interpréter.

Dans les podcasts que j’écoute, même quand il s’agit d’une enquête, il y a un “je” qui raconte, qui ne se cantonne pas à un rôle, mais qui ose être une personne. C’est notre proxy dans l’histoire, et l’histoire qu’il raconte est aussi son histoire, aux prises avec l’histoire qu’il veut nous raconter. Ça fait beaucoup d’histoires, pas toutes au même niveau.

Depuis quelques années, on commence enfin à voir ce type de posture dans des podcasts francophones, accompagnée d’une haute qualité de production. On a Meta de Choc (même si selon les sujets on retombe un peu dans “l’objectivité journalistique”) et Dingue, par exemple. Et plus récemment, de manière beaucoup plus marquée et avec un format “x épisodes pour couvrir un sujet”, Mon corps électrique.

Je salue cette évolution.

La liste de recommandations que j’avais l’intention de mettre à votre disposition ce soir, ce sera donc pour une autre fois, ma petite introduction s’étant transformée en longue digression prenant toute la place.

En attendant, vous pouvez vous pencher sur des recommandations d’écoute que j’ai faites par le passé, en fouinant dans les articles de ce blog tagués “podcast”. Bonne lecture, bonne écoute, et à bientôt!

Mais sérieux, le suivi psy? [en]

Depuis hier j’écoute, scotchée, le podcast “Mon corps électrique” d’Arnaud Robert. Ecoutez-le, vous ne regretterez pas. C’est du grand podcast, tant sur le fond que sur la forme, qui n’a rien à envier à mes “références” anglo-saxonnes. Chapeau.

Je dois réagir au sujet qui fait surface dans l’épisode 6 (mais commencez au début, hein, écoutez tout). L’accompagnement psychologique, ou plutôt, l’absence criante de celui-ci – à ce stade en tout cas du podcast. Et de ce que j’en ai compris, je précise bien. Si j’ai surinterprété, corrigez-moi.

Je suis estomaquée. Comment peut-on imaginer une seule minute qu’un entretien unique avec un psychiatre afin d’évaluer si un participant est suffisamment stable pour prendre part à une étude dont l’enjeu est de récupérer de la mobilité dans un membre paralysé puisse suffire en matière de prise en charge de l’aspect “santé mentale” d’une telle démarche? Comment peut-on imaginer laisser à des médecins le soin de l’accompagnement psychologique? Un médecin n’est pas un psychologue. Un psychiatre n’est pas un psychologue, ni nécessairement un psychothérapeute, tant qu’à faire. Traverser des mois et des mois, des heures par jour, au service de la science et dans l’espoir d’un miracle, si petit soit-il, comment peut-on imaginer laisser les personnes concernées gérer ça sans impliquer un ou des professionnels de la santé mentale?

Ça fait écho, chez moi, à deux choses.

La première, évidemment, c’est mon accident. Sans mesure de comparaison avec ce qui est arrivé à Arnaud, ne devant “que” me débattre avec un syndrome post-commotionnel, qui plus est avec un pronostic qui a toujours été celui de la récupération complète. Mais pendant tous ces longs mois depuis mi-mars, j’ai heureusement pu compter non seulement sur des séances hebdomadaires avec ma psychothérapeute (psychologue) – un suivi qui était déjà en place avant l’accident, mais qu’on songeait à espacer, des rencontres régulières avec mon psychiatre, dont on a doublé la fréquence par rapport à avant l’accident, et un coaching hebdomadaire spécialisé “commotion”, accompagnant le programme d’entrainement cognitif auquel m’avait adressé mon neurologue. Honnêtement, il a bien fallu tout ça pour m’aider à garder la tête hors de l’eau – et ça continue. Et avant d’avoir le suivi spécifique à ce que je traversais (le neurologue et le coaching), à savoir la récupération d’un syndrome post-commotionnel, malgré mes ressources, le fait que j’étais entourée, le soutien, les autres professionnels de la santé (médecins, physios…), je me sentais très désemparée et livrée à moi-même face à mes difficultés et peurs pour mon avenir.

Cet écho, pour dire: après un accident qui change la vie, que ce soit de façon très visible (Arnaud) ou très peu visible (moi), la santé mentale c’est d’office pas de la tarte. Et aussi, qu’un accompagnement psychologique, quel qu’en soit la qualité, n’en vaut pas un autre, et qu’il y a un sens à en avoir/fournir un spécifique à ce que la personne traverse (par exemple, il y a des psychologues spécialisés pour les personnes en attente de transplantation d’organe).

Le deuxième écho, plus parlant peut-être, c’est la PMA (procréation médicalement assistée). Là aussi, le corps/la personne “subit” le parcours médical, même si c’est voulu, choisi, désiré. Suite au suicide d’une amie cet été qui était justement dans ce type de démarche, j’avais creusé un peu. Même si ce n’est pas quelque chose auquel on penserait spontanément, je pense que ça ne surprendra personne si je vous dit qu’un échec de FIV est un facteur de risque suicidaire conséquent. Ça paraîtrait donc indiqué qu’un parcours PMA soit d’office doublé d’un suivi psy spécialisé? Qu’on prépare les patientes à gérer les échecs qui jalonneront quasi-inévitablement leur parcours, et la perspective d’un échec complet, d’un deuil à faire qu’on cherche désespérément à éviter? Qu’on les sensibilise à l’escalade d’engagement que représente ce processus?

C’est loin d’être le cas. La PMA, c’est un processus où on vend du rêve, de l’espoir, où on paie de son corps, de son temps, de son argent, de sa souffrance, dans l’espoir (parfois peu réaliste, suivant l’âge) de porter un enfant et devenir mère. On s’occupe du corps, et on les laisse se débrouiller avec les retentissements psychologiques.

Je range les échos et je reviens au podcast d’Arnaud et ce que l’écoute de cet épisode 6 en cours m’inspire. Je me dis qu’il semble y avoir, dans certains milieux médicaux, une naiveté extraordinaire concernant ce qui touche à la santé mentale. Je suis consternée. Consternée.

Note: ce billet a commencé sa vie en tant que “petit truc à vite partager sur Facebook“.

Allez, comme on est sur le blog, quelques liens en plus en rapport avec le podcast:

Cold Switzerland and New Things [en]

One thing I have succeeded in bringing back from my holidays is the desire and determination to blog. I’m trying to lower the bar, and not worry too much if I seem to be rambling on more than crafting content. I’ve always loved the “interaction/expression” aspect of blogging – over “communication”. Anyway, it’s cold here in Switzerland, and dark, and gloomy, and did I mention it was cold? Today was my first day back at work. I’m a bit disoriented, to be honest, but it went OK enough.

At home tonight I listened to The Secret of a Long Life (a Radiolab episode). It is about our sense of passing time, and how it is linked to memories and novelty. You know, the way the first few days of holiday go slowly by, and then everthing speeds up and suddenly you’re on the plane home? During the first days, everything is new and memorable. So it feels like the days were long. But then your days are less and less different from one another, and time starts shrinking. Taking the research on the subject literally, Sindhu goes off to try and live a week of absolute novelty. Doing only new things, eating only new things, sleeping in a different place every night.

Having just made the decision to spend 10 days of holidays in the same bed in Rajasthan every night instead of in a different place in Nepal every night, of course this had my attention. It also had strong echoes to my early 2019 realisation regarding making memories (yes, another podcast episode involved). Following that, I remember I had been very deliberate, when Aleika came to visit shortly after, about planning various activities to make for more memories. I must admit that over the last years, my focus has moved more towards creating routine and stability. I need it, but I know I also need novelty. How does one find a balance between the two?

All this reminds me of another podcast episode, Making the Good Times Last, which I listened to a few months back. It is about the science of savoring, and this connects with an idea put forward near the end of the Radiolab episode: it’s not just/so much doing new things that counts, but focusing our attention on them. You can see how this fits in with some kinds of mindfulness practice, or the importance of sensory perception in hypnotherapy (yes I still need to write about hypnotherapy).

As I try to navigate through life, I find myself cooking up plans (mental plans) to organise and schedule my life and activities. For example, I brought back a recipe book from Rajasthan: how about I cook one recipe from the book every week? Or, doing new or unusual things. Maybe I should make sure I do it at least once every month? Peak experiences: should I go to the cinema more often, for example? The list can go on and on, and the problem is that if I did try and put this into practice, I would probably quickly end up suffocated by everything I want to do. (I already tend to, just as things are – thanks, hyperactivity.)

So, how much routine? How much newness? How much simply paying attention to things differently? How do I navigate life whilst at the same time respecting my need to spend time in my comfort zone, and my need to discover new and exciting things, and hold down a job? Should I move the furniture around in my flat more? (23 years in the same flat, heavens.) I feel I already don’t have enough time to do all the things I know I enjoy doing, how many more should I explore?

So many questions. I didn’t take a photograph of the lake and the clouds and the mountains with snow on top this morning on my commute – it was stunning – so I’ll leave this post without a photo, for once.

Of Brains and Drugs [en]

India offers time to slow down, specially when your gut is unhappy. I might also have overdone it when it comes to activities – so I’ve been taking it slow these last two days and catching up on my podcasts, lying on my bed under the fan.

I’ve just listened to the episode “Why’d I take speed for twenty years?” by PJ Vogt (who used to do Reply All, and before that TL;DR). It’s about ADHD medication, its history, and PJ’s history with it. It was a slightly unsettling listen for me, given my history. There is a second part coming up, which maybe will tell a story closer to mine. I’m looking forward to hearing it.

In the meantime, here are some thoughts. Clearly the contexts in which PJ and I live are very different, regarding ADHD diagnosis and medication. The US clearly seems to have an overdiagnosis problem, and is generally very pill-happy with anything that has to do with mental health. Just take the pill and off you go. At least, that’s how I perceive it, seen from Switzerland – where ADHD is sorely underdiagnosed and even when it is, getting medication is far from easy.

PJ tells how after 20 years of taking various ADHD meds (+ antidepressants), since he was a teenager, he went off meds following the advice of his new psychiatrist to see how things would go, and figure out what was necessary. He’s still off them (a couple of years later, if my memory hasn’t been digested by my microbiome). And he has had a chance to discover – and like – the way his brain functions without. The podcast also walks us through the early years and decades of amphetamine and the search for a condition it could be the answer to. Initially an attempt at managing asthma, it turned out to not be great at it. So, there is this underlying idea of drugs looking for illnesses. In the early seventies, amphetamine (+ methylphenidate) became tightly regulated and stopped being authorised to treat depression. And that’s when ADHD diagnoses started to become more common, increasing dramatically over the next decades.

Now, nobody here is saying ADHD isn’t a real thing. However – and this is an issue I’m acutely aware of – it is a clinical diagnosis. It means that how you perform on this or that test does not determine if you have ADHD or not. What counts is the impact it has on your life. Does it prevent you from functioning, and to what extent.

PJ tells us he initially went through a series of psychometric tests, and it turns out he was below the threshold for the number of criteria required for a diagnosis (he discovered this whilst fact-checking the episode and reading through his initial medical report for the first time as an adult). One should note that diagnostic criteria evolve with time – those in the DSM-5 do not exactly match those in the DSM-IV. This means that “having ADHD” or not does contain an element of arbitrariness and subjectivity to it. Also, as it has to do with the capacity to function, one person could exhibit sufficient ADHD traits in one context, and not in another. It is not like the influenza or covid, where you “have it” or “don’t have it”.

It’s more like hearing loss, where there is a continuum starting with normalcy, and somewhere there is a cut-off point where the inability to function in the subjects life requires outside measures to compensate. I really like the parallel with hearing loss, as this is an issue I also have to deal with. Let’s dive in there.

I was born with hearing loss. I was born with ADHD. In both cases, they are not severe. I functioned for 13 years before knowing I had hearing loss, for 38 years with hearing aids, and for 47 years without knowing I had ADHD, and without medication.

As far as my hearing loss is concerned, if I live a life made up mainly of one-on-one interactions, with people who do not speak too quietly, if I don’t have to follow too many discussions with multiple people (particularly in noisy places or places with bad acoustics), if people around me take the trouble of coming up to me to speak instead of trying to communicating from the other room, and if my pace of life is mellow enough that I can recuperate from the extra effort I make in many social situations, I can live without hearing aids. And maybe, even, without “hearing loss”. When I am alone at home, my hearing loss doesn’t have much impact on my life. But I need to work, I want to have a social life, I want to have easy interactions with strangers and be able to communicate with soft-spoken people. At one point I was tired of struggling with all that, and took the plunge to get myself fitted with hearing aids. I have never looked back.

As for ADHD, maybe there is a life configuration for me somewhere in an alternate universe where it doesn’t have an impact on my life. Maybe a life where I don’t live alone, don’t have to work – or only when I feel like it, am free to fill my days with exciting things, have support for dealing with housekeeping, admin, troublesome emotions. And in a way, there have been times in my life where my life was rather well-adjusted to how I function – when I was self-employed, for example. Without really realising to what extent, I had built a career for myself which made excellent use of the particularities of the way my brain works. But as with living with hearing loss without hearing aids, it also came at a cost: missed opportunities, extra unrecognised efforts for the same accomplishments, and yes, pain, isolation and exhaustion.

I’m going through this because there is some vision of disability that leans towards “there is no disability, it’s just that we live in a world which is not adapted to our needs, abilities, or specific ways of functioning”. It comes in different shades and intensities, of course, but from my point of view, although obviously we must strive towards inclusion, it is normal that society is built to function with the “normal” in mind. It is normal that people expect me to hear when they are talking from the other room, because that is what works with the overwhelming majority of people to interact with. It is normal that people expect others to be able to be roughly on time at a meeting, because most people are able to. It is normal to write text in size 10 to 12, because most people are capable of reading at that size. Again: I’m not arguing we should not be inclusive, but I do think that there are objective differences in individuals’ ability to participate “normally” in the world we live in, and that it does nobody service to negate disability with ideas like “you shouldn’t have to take meds to be able to work and manage your household, society should adapt to you”.

Anyway. ADHD is a real thing. It’s not a black-or-white thing, but it is a neurodevelopmental disorder, it has a basis in physiology, and it can be more or less severe, and for similar “objective” severity, it can create big problems in one individual’s life and hardly any in another. I am saying this because when the discussion turns to ADHD and medication, or other neuropsychological or psychiatric conditions, there is always somebody to say that you should eat less sugar, do more yoga, tell society to go f*** itself, give yourself a kick in the pants, try harder, and also, taking meds long-term can’t be good for you.

That being said, what I really want to write about is how disturbing it is when you realise that taking a pill can change your life. Because that is what happened to me. I only have a couple of years of hindsight (who knows, maybe I started taking my pills when PJ stopped taking his), but the change is shocking for me. I went through years (approaching decades) of therapy way before I suspected I might have ADHD. I figured out a lot of stuff, sorted through it, grew a lot, came up with an impressive amount of what I now understand are coping strategies for ADHD. But my life was still collapsing. And taking a pill changed it pretty much overnight.

Five years ago, I experienced the real shock of understanding how much chemistry could transform what we think of as psychological. I had rather nasty vitamin D deficiency. After a couple of weeks of supplementation, my mood had lifted, I had stopped feeling tired and down all the time, life seemed to make sense once again. Because of a vitamin. A few years later a colleague told me how vitamin B deficiency had made her suicidal before they understood what was going on with her. We like to think that the mind conquers the body, but as an upset stomach in India can remind you, it’s more often the other way around.

Twenty years ago I was dead against taking any kind of psychoactive medication. Life put me face to the wall a couple of times and I revised my position. I still think drugs should come with therapy or counselling. Just like when you take antibiotics for an infection you’re also going to rest, if you’re on blood pressure medication you are also going to do what you can with your lifestyle to not make it worse, and if you need glasses or hearing aids you also learn to do things like sit in the front of the class, pick a quiet restaurant if you’re going to have an important conversation, and take care to preserve your eyesight or hearing.

I see two important reasons which, for me, explain why there is so much negativity around taking medication for psychological issues. First, our culture does think mind and body, spirit and physical, as separate. Taking medications that help your brain do its work better, and have an impact on what we think of as “me”, well, that kind of negates this separation of mind and matter. So it’s uncomfortable.

Second, we know enough about the placebo effect to be wary of it, but not enough about it to really understand what it does and how it works (to say nothing about how it is a key element of a double-blind randomised clinical trial). So, the assumption is “it’s all in your head”, right, you’re feeling better because you took a pill that you think is going to make you better. Improvement of psychological symptoms is not as simple to measure objectively as an infection or fever disappearing.

What makes it worse is that after some time, one gets used to the “new normal” with the medication. I have no temptation to stop my blood pressure medication because my blood pressure is well-controlled and I start to wonder if the medication is actually doing something. But life with ADHD meds, yeah, it feels all normal now, and sometimes the doubt creeps in. Do I really need these meds as much as I think I do? Was it really that bad “before”? I recognise that doubt for what it is – it happens with my hearing aids too. It’s super easy to check, however. I just have to try and go to work one day without my hearing aids and I’ll see how bad it is. Nobody will say “you’re struggling because you know you’re not wearing your hearing aids”. If I do the same thing with my medication, of course that will be the obvious assumption: it’s in your head.

For what it’s worth, I once went to a concert with people from my singing group without my hearing aids. Completely forgot them. And didn’t know I’d forgotten them. As we were waiting to go in, and I had a few exchanges with the people there, I couldn’t help but gradually notice how bad and muffled the acoustics in the hall were. I really had trouble understanding what people were saying to me. I thought it was the room. I only realised it was the absence of hearing aids when I reached up to press the button that allows me to increase the volume.

This has happened to me a bunch of times with my ADHD meds. Every now and again (rarely) I’ll forget to take them. (Scoop for people lamenting about these “horrible addictive meds”: people with ADHD regularly forget to take them… draw the conclusions.) I find myself faffing around, or having a really hard time getting something done at work or at home, and after an hour or so it slowly dawns on me… wait… did I take my meds?

Of course I wonder if I “lost” anything in the process of going “on medication”. I can clearly see what I gained. I’m happier, I’m able to do things, my mood is more stable, emotions are more manageable, my friends tell me I’m less scattered, I’m tired in the evening and actually want to go to sleep, I’m functional in the morning. I’m making plans for the future. But have I left anything behind? When you lose your hearing, what you don’t hear doesn’t exist. You don’t know that you’re not hearing the things you don’t hear. So, do I know what I left behind, if anything, with medication? Will I be like PJ in ten years, going off meds and rediscovering aspects of myself I had forgotten existed? Right now I’m happy with how things are, and have no objective reason to be concerned. But my mind wanders around and goes places, by curiosity, and this is one of them.

I’m looking forward to listening to the next episode.

Sleep With Me Podcast [en]

It’s 11pm. It’s 30 degrees on my windowsill. The cat is dripping off the couch like a Dali watch. I slept all afternoon, because of a short night, and woke up at 8.30pm.

Tomorrow I take my car and go to work. It feels a little unreal, because it’s so hot that Switzerland is turning into a tropical country, and I’m thinking of installing a ceiling fan, and mosquito nets, because even though mosquitoes aren’t a problem now, in a few years they will.

Caught in a mildly dystopian SF short story.

There is a warm breeze that sometimes makes it onto the balcony where I’m writing. Sometimes. Tonight I will sleep with the fan on.

On Wednesday morning I will flee to the chalet, where it’s 10 degrees cooler. I will work from up there. I will sleep. The cats won’t like the commute but I know they’ll appreciate the temperature change too.

The other day I was listening to the episode The Shipping Forecast on the 99% invisible podcast. I like this podcast because it’s super interesting, and also because (paradoxical, I know), I use it to go to sleep when I have a hard time falling asleep. I’m not alone (listen to the episode). It’s a bit annoying because I end up having to relisten to episodes I fell asleep to, but it works really well.

Seems many enjoy falling asleep to the sound of the shipping forecast. Roman Mars does a reading at the end of his episode, and indeed, I was almost asleep by the end. On this episode, he introduced us to Sleep With Me, a podcast designed on purpose to help people go to sleep. I’ve used it a few times and it’s wonderful. I can’t make head or tail of what Drew is talking about, but it works great. The added bonus is that I don’t feel bad about falling asleep in the middle of the story, as that’s what it’s designed for! From a storytelling point of view I’m fascinated by how meandering the narration is. All over the place, just like your brain when it wanders off before pulling the curtains for the night.

If you have trouble going to sleep, whether because of the heat or thoughts running around in your head, I definitely recommend trying it.

 

Ordinary India [en]

Last week’s Reply All was riveting. The second part was this week. You should listen. This post will spoil things if you haven’t. Trust me, you won’t regret the ride you’ll be taken on.

So, this story has something to do with India. My readers and friends know that I am quite familiar with the country. (A degree in Indian culture, rusty Hindi which was once functional, two years in the country end-to-end, one of which was in one stretch.)

While I was listening, something was niggling at me. And I finally managed to put my finger on it. See, one part of the story is Alex’s magnificent sleuthing, and diving into the underworld of scammers. But another part is… India.

I kept having the feeling that (no fault of Alex or the rest of the crew) bits and pieces of what was going on were getting lost in cultural translation. I got to see behaviours that I know to be usual or at least unsurprising through the eyes of somebody who is not familiar with Indian culture or India – and at times made to appear more significant than they seemed to me.

For example: guy from far out in another state goes to Delhi to try and make it in the city – perfectly plausible. Ends up doing some shady job: also not surprising. Not that many moral qualms? I’ve remarked previously (long looong ago on this blog) that Judeo-Christian culture has strongly embedded values of righteousness, fairness, and stuff we consider basic like “not lying” that is not necessarily present in a majorly Hindu-influenced culture. So, lying to somebody’s face? BSing like there is no tomorrow? Being completely impervious to confrontation, even when the facts are in front of your face? Not at all surprising. This is where our Western understanding of how relationships and individual psychology break down.

Inviting somebody you’ve never met (or barely know) to your house? Quite normal too, and, I’d like to add, particularly if they are foreign (mix of curiosity, sense of opportunity, and also simply duty to be a good host). Similarly, asking somebody “what’s your plan?” is a rather banal question (I always find the American “what’s up?” weird, in the same kind of way). Being stand-offish, not showing up, last-minute stuff, cancellations: just normal.

A few years ago, I noticed that the way I deal with this is I really slip into “Indian mode” when I’m in India. In “Indian mode”, I do not function the same way as in “Swiss mode” – at all. Things that annoy me in Switzerland do not annoy me in India. I do not want to do the same things. The way I approach planning (or lack of) my time is completely different. There is Swiss-Stephanie and there is India-Stephanie, and I have learned that one should not try and make plans for the other. Weird, huh?

Before I wrap up, I just want to make two things clear (because I can feel the comments coming):

  • I’m not criticising Reply All’s stellar job on this story. Just pointing out some minor points of frustration for me, which are only impacting me because I am way more familiar with India than most Westerners. And seizing the occasion to show how easy it is (and I’m sure I do it too!) to ascribe intentions or meaning of our own to words or actions that we don’t have the cultural framework to interpret more precisely.
  • I am not dissing India or Indian culture. I am describing some behaviours as they come across seen from here, and the cultural gap may mean they are seen negatively – just as some Western behaviours are perceived negatively when seen from India.

Read this article about the sleuthing on Ars Technica.
Read the AMA on Reddit.

This American Life Episode Selection [en]

[fr] Quelques épisodes de This American Life qui valent le détour.

I had my worst “forgot something on the stove” episode today. No fire, but I came back after three hours away to find my flat completely filled with smoke. I had to hold my breath to open the windows (everything was closed). My pan is dead (I’m not even going to try). Quintus was outside but Tounsi was inside, and was exposed to the smoke for all that time. One of the first things I did after opening the first window was throw him onto the balcony. He seems fine. Vet say to keep an eye on him for the next two days or so, as symptoms can be delayed.

Now my whole flat stinks of burnt smoke. Good thing it’s not January, as a friend noted.

Some podcast episodes for you. (And me, maybe one day). They are from This American Life, which I listened to a lot at the chalet. It’s really great — I should have started listening years ago.

  • #536: The Secret Recordings of Carmen Segarra: a chilling first-person account of the culture of complacency in the world of finance regulation.
  • #525: Call for Help: remember this story that was making the rounds, about a family that had to be rescued at sea because of a sick baby? and how a lot of the (uninformed) public opinion was up in arms about how irresponsible it was to go to sea with a baby, and then ask the coast guards to bail you out when things got rough? Well, as you can guess, there is much more to the story than that…
  • #555: The Incredible Rarity of Changing Your Mind: so, one of the studies this episode is based on has been retracted, but it remains interesting. First, to note that people rarely change their mind, particularly on ideological matters. And then, and this is something I think about a lot, what makes people change their mind? We do have anecdotal evidence that knowing somebody who is gay (or trans, or kinky…) can turn us around on those issues. And I think that people’s theoretical stance on an issue can be somewhat disconnected from what they would think, or how they would react, faced with a real human being they have a connection with and who is concerned by the issue.
  • #556: Same Bed, Different Dreams: for the very moving story of the two kidnapped South Koreans, the actress and the director.
  • #557: Birds & Bees: how do we talk to children about race, death, and sex? Some very good questions about consent and its “fuzziness” (I personally don’t think we should have to say “is it OK if I kiss you?” and wait for an enthusiastic verbal “yes” — seriously?!), how you can’t escape the question of race, and a moving segment on a grief counselling centre for children. If I could go back in time, I would take my 10-year-old self there. Sadly, we weren’t quite there yet 30 years ago when it comes to grief and children.
    By the way, this episode brings me to Death, Sex & Money — a podcast about all these things we don’t talk about.
  • #562 and #563: The Problem We All Live With (two parts): how do we reinvent education to get poor minority kids to perform as well as white kids? An exploration of the solution that works, but that we’re not putting much energy into implementing: desegregation. I found this episode both fascinating and infuriating. Fascinating because issues of race are not on the forefront in Switzerland as they are in the US, and infuriating that such a simple elegant solution is not given the attention and resources it deserves.

 

Stories to Listen to, Moderating Blog Comments, Teaching Blogging [en]

[fr] Deux ou trois épisodes de podcasts à écouter. Quelques réflexions sur les commentaires de blog (spam ou non?) et la difficulté d'apprendre à bloguer.

Listen to Greetings from Coney Island. I swear you won’t be disappointed. Just don’t make the same mistake I did, and be a bit distracted early on, not realising there are two parallel stories, told by two women with (to me) very similar voices. I actually reached the end of the story before realising I had missed the whole point, so I listened to it all again. It was worth it.

vue cham

Another episode of Love+Radio reminded me of a Moth story I heard quite a long time ago now. It’s about a volunteer at a suicide prevention hotline. That story made me understand something about suicide (which I am lucky not to know from the inside): it’s not about wanting to die, it’s about wanting the pain to stop. Like many Moth stories, it’s beautifully told and very moving. Well worth the small moment of your life you will spend listening to it.

I know, this blog is turning into a podcast review. But not only. See.

One of the challenges I face as editor-in-chief of Open Ears is approving comments. Not so much because we publish controversial articles that have people biting each other’s heads off in the comments (not at all, actually), but more because

  1. spambots are getting better and better at sounding human
  2. some humans are sounding more and more like spambots.

About the latter: people like me have been saying for years that a great way to get your website or blog known is to comment on other blogs. But that’s not quite the whole story. Aligning fluffy or self-promotional comments on other people’s blogs might get your “nofollowed” links out there, but isn’t really going to do what matters, which is encouraging people to actually know you and read your stuff because they’re interested. Clicks and visits only really mean anything if they come from the heart.

So what does work? Well, actually, being a valued member of the communities you are part of. At the time, during the Golden Age of Blogging, leaving meaningful comments on blogs you read and linked to was a way of being that. It’s not about the links, it’s about the place you respectfully take or are given willingly. Add value. Be helpful. Try and make friends. That’s the spirit of “leaving comments”.

Which brings me to an important piece of blogging advice I came up with while trying to teach my latest batch of students the basics of blogging (it was, to put it kindly, a mixed success): blog about stuff that’s in your head. Write about what you know. If you have to google around to factcheck this or that, find a link, or look up a detail, that’s fine. But if you find yourself doing research and reading up to gather the material for your blog post (and the post is not about your research), chances are you’re “doing it wrong”.

Blogging is this weird thing which as at the same time so easy (for “natural bloggers”) but so hard to learn or teach. I think that is because it touches upon “being” more than “doing”. It’s about daring a certain degree of authenticity that we are not encouraged to wear in our school or professional lives. And it’s definitely not how we learn to write. In a way, teaching blogging is a bit like trying to teach people to dare to be themselves in public. This makes you think of Brené Brown and vulnerability, does it not? Exactly. And that is why, I think, blogging is a powerful tool to connect people.

Invisibilia: A Podcast About the Hidden Forces That Shape our Behaviour [en]

[fr] Un super podcast à découvrir: Invisibilia. Ça parle des forces invisibles qui conditionnent le comportement humain. Et c'est super bien fait. Quelques histoires pour démarrer: l'homme aveugle (sans yeux) qui voit par écholocalisation et fait du vélo, la femme qui ressent physiquement ce qui arrive à ceux autour d'elle (un cas extrême de "synesthésie miroir"), le rapport entre nos pensées et qui nous sommes (sommes-nous nos pensées? quelle importance leur accorder?), et j'en passe.

I thought I’d written a post somewhere introducing the podcasts I listen to regularly. I don’t watch TV, but I do listen to a bunch of podcasts religiously: Radiolab, On The Media, The Savage Lovecast, and The Moth. Serial was great, too.

Through Radiolab, I recently discovered the new show Invisibilia. It’s actually co-hosted by one of Radiolab’s former producers, and there is clearly in the choice of subject matter a kinship with what drew me to Radiolab in the first place all these years ago.

Invisibilia is about the stuff that we can’t see and which shapes human behaviour. In the pilot season, you’ll find stories about a blind man who can actually see by using echolocation, a woman who cannot feel fear, and Paige, tragically flipping through gender categories. And that’s just the beginning. Subscribe to the podcast and start listening.

Here’s a bunch of random takeaways for me after listening to the first episodes:

  • the three “stages” in the history of our thoughts: 1) all thoughts are meaningful (Freud), 2) some thoughts are BS and we can think ourselves out of them (CBT), 3) our thoughts don’t deserve that much attention (mindfulness)
  • how important categories are in helping us make sense of the world (I kind of knew that); reminded me of India again and the utter confusion of the first weeks where all my European categories broke down, and I didn’t have any Indian ones yet to work with
  • how gently facing one’s fears works much better in getting rid of them than obsessing about them and trying to avoid their object
  • how important our expectations of what people can do are in determining what they actually are going to be capable of doing (“blind people can’t do that“)
  • venting when angry, whilst therapeutic in the moment, actually makes us more angry and aggressive in the long run

Sound interesting? Check out the list of the previous episodes. If you start listening, let me know!