Category: Personal

Anything and everything about me and my life. You’ll have to hunt a lot for gossip-worthy tidbits, though.

La fin en vue [en]

On sait tous comment c’est. Le début des vacances, les jours s’étirent et le temps ralentit. Et soudain, on se retrouve presque à la veille de rentrer, un peu désorienté et dépaysé, à se demander si le monde normal de “à la maison” existe vraiment.

Demain, je rentre à Sonipat. Une nuit et un jour là-bas, puis direction Delhi pour prendre mon avion au milieu de la nuit, très tôt dimanche matin. Cela fait bien une semaine que je ne sais plus quel jour on est. On est jeudi, mais ça ne veut plus rien dire.

Juliette Armanet chante “c’est la fin” en boucle dans ma tête. Je pense à toutes les choses que je n’aurais pas faites durant mon séjour, tous ces possibles qui ne se sont pas réalisés, je m’exerce à “lâcher”. Des choses que je pensais ramener, bijoux, tissus, et autres peut-être, pour lesquels il me semble maintenant déraisonnable de fournir l’effort, au risque de regretter plus tard, de me dire “j’étais là, j’aurais quand même dû profiter”. Les habits que je voulais acheter avant-hier (ou était-ce hier?) et que j’ai remis au rayon car les cabines d’essayage n’avaient pas de lumière (nuit noire) et que ma capacité à communiquer avec le personnel du magasin n’a pas suffi à les faire marcher, ou apparaître, et après avoir attendu et attendu j’ai cru comprendre qu’à midi il y aurait la lumière, et je n’allais pas attendre là une heure dans ce magasin-fournaise alors que mon idée initiale était de rentrer dans le magasin, trouver 2-3 trucs, essayer, acheter, rentrer. J’accepte relativement bien tout ça.

Mais c’est la fin. Je ne l’ai pas vu venir. On est jeudi soir, dimanche matin je suis de retour à Lausanne, quelques heures de décalage horaire perdues en l’air entre Delhi et Zurich.

Me suis-je assez reposée? Ai-je assez récupéré? Y a-t-il un bilan à ces vacances qui ont démarré par un changement d’aiguillage assez brutal? Ai-je fait ce qu’il fallait? Vais-je revenir dans ce coin du monde un jour, ou est-ce que je quitte à tout jamais le Rajasthan, cette ville, ces gens? Vais-je réussir à ramener dans ma vie en Suisse un peu de ralentissement, de sérénité, d’équilibre? Non pas que j’idéalise mon temps ici, je ne veux pas croire ou faire croire que j’ai trouvé la paix et la sérénité ou un rythme de vie que je pense transposable en Suisse dans une vie professionnelle active, mais j’ai pu reprendre contact avec un certain goût du temps qui passe, du faire, de l’être, qui m’ont un peu manqué ces dernières années dans ma vie, et je rentre avec l’espoir de réussir à me servir un peu dans cette petite boîte à épices indienne que représente cette dizaine de jours à Nawalgarh, et aussi la crainte d’échouer complètement à cela.

Les phrases longues c’est pour vous montrer comment c’est dans ma tête.

J’ai peur d’arriver à la fin, alors que je suis déjà sur le seuil. La fin, comme la fin de la vie, c’est clore, c’est dire adieu à tous les potentiels, à tous les possibles. Quand on meurt, la somme de notre vie est faite. Elle est entière. Elle est comme elle est, ou plutôt a été. Il n’y a plus de marge de manoeuvre pour changer, pour être autre chose, faire autre chose, surprendre ou se surprendre, décevoir ou être déçu.

Loin de moi l’idée de mettre sur le même plan deux semaines de vacances et une vie qui s’achève, mais le mécanisme de clôture est là aussi. Tant que les vacances sont encore en cours, leur sens n’est pas complet. Elles peuvent encore apporter ceci ou cela, donner l’opportunité de faire, d’observer ou d’accomplir – de mettre du sens dans cette parenthèse au milieu de la vie ordinaire. Une fois que c’est fini, une fois dans l’avion du retour, l’histoire est écrite, la pièce est jouée, ce qui est fait est fait et ce qui n’est pas fait n’est pas fait. On peut tirer un bilan. On n’est plus dedans, on est dehors, à chercher à faire sens, peut-être, mais ça ce n’est plus du vivre, c’est de l’analyse, du commentaire, de l’interprétation, du discours sur. Un voyage qui se termine, c’est un espace qui se ferme. Un délai avant lequel il reste encore un peu de temps pour quelque chose, qui réveille désagréablement en moi ce sentiment d’urgence de vivre dont je parlais hier.

Comment faire, pour vivre ce jour qui vient comme s’il pouvait être suivi de tant d’autres, alors que je sais pertinemment que c’est le dernier? Aujourd’hui, alors que j’étais couchée sous mon ventilateur entre un repas et une sieste, j’écoutais un épisode du podcast The Pulse: How We Talk About Death. Il y a une histoire qui me prend à rebrousse-poil, mais qui me fascine aussi, parce que ça va tellement à l’encontre de mes croyances sur le monde que je me demande si je ne suis pas en train de rater quelque chose. Ce couple, dont l’un des deux est HIV+, qui se rencontrent dans les années 90, et vivent ensemble 30 ans sans jamais avoir les fameuses discussions sur la mort qui est à l’horizon, restant sciemment dans le déni en quelque sorte, et malgré les alertes, les hospitalisations, les “ça n’a pas passé loin”, continuent à vivre comme si cette épée de Damoclès n’était pas là – une formule qui leur a fort bien réussi, semble-t-il.

Alors, en continuant avec mon parallèle douteux entre les vacances et la vie, la fin du voyage et la mort, est-ce que j’arrive à vivre demain matin comme si je ne rentrais pas? A ne pas voir ce mur dans le temps devant moi, à me balader en ville comme si je pouvais y revenir demain? Est-ce souhaitable? Qu’est-ce qui me retient?

Je ne sais pas.

Avoir le temps [en]

J’ai toujours vécu avec un sentiment d’urgence vitale. Littéralement. Il y a tant de choses que je souhaite faire (hyperactivité, allô) et nous ne sommes pas éternels (j’ai appris jeune que chacun pouvait mourir demain). Il y a en moi une énorme pression interne à “profiter de la vie”, “faire”, accomplir des choses afin que ma vie ait un sens. Un sentiment de “pas assez de temps”, qui se manifeste également par une absence d’envie de dormir, une activité que j’ai tendance à percevoir comme du “temps perdu”.

Tout ceci est pas mal pourri, évidemment, et certainement le résultat de la combinaison entre TDAH et parcours de vie. Maintenant, j’ai quand même du recul par rapport à ça, et il y a eu du changement depuis que je suis sous traitement. J’aime beaucoup plus mes nuits, par exemple, et comme j’arrive effectivement à “faire” plus, je me sens beaucoup mieux par rapport à ma vie. Mon angoisse existentielle a également largement disparu. Auparavant, j’avais déjà compris que cette pression à faire et profiter me paralysait, et m’empêchait ironiquement de “profiter” de ma vie. Pourri, je vous ai dit.

Il y a quelques mois, mon chef m’a posé une question dont la réponse était évidente pour moi, mais qui m’a permis de vraiment expliciter un aspect de mon fonctionnement. Il m’a demandé si, dans une situation où j’avais du mal à avancer sur une tâche, un peu de pression supplémentaire m’aidait ou non. Clairement, cri du coeur, la réponse est non. En fait je me mets déjà une énorme pression interne pour à peu près tout (y’a quelque chose à écrire là au sujet du perfectionnisme et de ses manifestations), et comme dit plus haut, plus le stress grimpe, plus la pression augmente, plus je culpabilise de ne pas faire (“assez” – et je vous laisse imaginer à quelle hauteur est la barre) et moins j’arrive à faire. Typique des mécanismes de procrastination, typique TDAH.

Là où je suis le plus capable de produire, c’est quand il n’y a pas de pression (“il faut faire”) mais de la motivation interne (“j’ai envie” ou “c’est important”). Cette motivation interne, c’est une sorte de cri du coeur (“impulsivité/impulsion” si on veut un vocabulaire un peu plus scientifique) qu’il m’est difficile de commander. C’est là où c’est pas là. C’est “on” ou “off“. Qu’est-ce que j’aimerais en avoir la clé! A nouveau, avec mon traitement c’est plus nuancé, et c’est plus facile qu’avant d’accomplir des choses pour lesquelles je n’ai pas une grande motivation. Je suis moins susceptible d’être embarquée par mes élans à des moments moins opportuns, aussi. Je peux résister.

Un domaine où je vois ça très fortement à l’oeuvre, c’est dans la création de vidéos et de documentation pour la communauté Diabète Félin. Si l’élan est là, hop, je fais une vidéo ou je passe 3 heures à écrire, et c’est fait. Mais si l’élan n’est pas là, j’ai beau me rappeler que cette tâche est importante pour un projet global qui me tient à coeur, ça ne prend pas. Idem pour l’écriture. Les rares fois où j’ai écrit dans le cadre d’un mandat où il fallait produire, c’était vraiment pénible. Par contre, quand j’ai une idée pour un article, hop, j’écris, et voilà.

Comme mon chef l’a très bien résumé: le management par objectifs, c’est pas trop pour moi. Ce qui peut être difficile à comprendre, toutefois, c’est que si les objectifs et la pression ont tendance à me “casser”, je fonctionne plutôt bien face à une bonne situation de crise (mais une vraie, pas une fabriquée: l’importance et l’urgence doivent être une évidence).

Depuis quelques années, j’écris moins. D’une part, depuis que je ne suis plus indépendante, je me suis retrouvée avec la priorité soit du travail pour un employeur, soit de la recherche d’emploi. Et pré-diagnostic, il faut bien l’avouer, je n’allais pas super bien. Depuis mon diagnostic, aussi (ou peut-être même avant? c’est dur de s’y retrouver dans les années qui passent), je ressens moins le besoin d’écrire. J’ai beaucoup écrit pour me comprendre, comprendre le monde, digérer des émotions. J’ai beaucoup écrit car ça bouillonnait à l’intérieur et j’avais besoin de poser quelque part une information qui me tenait à coeur ou une prise de position. J’ai moins ça, maintenant. Une part le traitement, mais une autre part, déjà là je pense, simplement l’âge et peut-être un peu de sagesse et de maturité qui vient avec. J’ai bientôt le double de l’âge que j’avais quand j’ai ouvert ce blog. Plus du double de quand j’ai démarré ce site.

Mais aussi, je réalise de plus en plus, parce que pour écrire (et faire certaines autres choses que j’aime), j’ai besoin d’avoir le temps. J’ai besoin d’avoir du temps ouvert devant moi. J’ai besoin de ne pas sentir le poids des choses à faire, de ne pas avoir un temps limité à disposition. Je suis sûre que pour certains d’entre vous, ça semble complètement anodin de réaliser ça. La réalisation c’est une chose, réussir à en faire quelque chose, à mettre en pratique, c’en est une autre. Comment, dans mon quotidien surchargé (pas que d’obligations, aussi de choses que j’ai choisies et que j’aime), est-ce que je m’octroie suffisamment de temps ouvert pour qu’émerge l’élan de vouloir? Parce que voici quelque chose qui ne marche pas: me dire, allez, cet après-midi je ne m’oblige à rien, donc je vais pouvoir prendre le temps d’écrire, ou alors de lire, ou alors de trier mes photos… Ça ne suffit pas.

Ici, en Inde, en vacances, voilà que je retrouve ça. L’Inde est un pays rempli de temps morts, de chaleur qui cloue sur le lit sous le ventilo, de digestion capricieuse qui oblige à rien faire, d’imprévus et d’annulations, de moments dans la journée où tout s’arrête, soi-même y compris. Ce n’est pas pour rien que j’ai énormément écrit et lu en Inde. Les vacances, c’est bien aussi. On est hors du quotidien, on laisse nous soucis derrière nous, pour autant que les vacances soient assez longues et qu’elles comportent assez d’espace pour se laisser vivre.

Je suis ici depuis 10 jours. Dix jours, un début chaotique avec des projets de vacances annulés dans des circonstances difficiles, un changement radical de programme, et là une semaine, à une demi-heure près, que j’ai posé mes valises à Apani Dhani au Rajasthan. Durant mon trajet en voiture depuis le Nord de Delhi, je me suis dit “ah! je vais pouvoir écrire!” et j’ai même enregistré 45 minutes de notes sur le début de mon voyage, à défaut de pouvoir directement sortir mon ordinateur dans la voiture pour me mettre à taper. Au final, ce n’est qu’avant-hier que l’élan d’écrire est arrivé, après quelques premiers jours un peu trop actifs et un ralentissement soudain imposé par mon système digestif (rien de grave… juste le truc qui assomme et fait rester allongé sous le ventilo en attendant que ça passe…).

Quelle est la recette? Quelles sont les “conditions-cadre” (si vous avez bossé en Suisse allemande vous apprécierez la référence) pour que j’aie envie d’écrire, et écrive? Est-ce réalisable avec moins de deux semaines à disposition, en Suisse ou quelque part de plus proche? Pourquoi est-ce que des fois ça vient, des fois pas?

Une autre chose pour laquelle j’ai pu apprécier de prendre du temps c’est de trier et retoucher les photos que je suis en train de prendre ici. Comme j’avais “tout le temps du monde”, j’en ai aussi profité pour apprendre à utiliser certaines fonctions de Lightroom que je ne connaissais pas (il y en a tellement). Qu’est-ce que c’était agréable de pouvoir trainouiller à essayer des choses, sans la culpabilité d’avoir le sentiment que je “perds mon temps”!

Of Brains and Drugs [en]

India offers time to slow down, specially when your gut is unhappy. I might also have overdone it when it comes to activities – so I’ve been taking it slow these last two days and catching up on my podcasts, lying on my bed under the fan.

I’ve just listened to the episode “Why’d I take speed for twenty years?” by PJ Vogt (who used to do Reply All, and before that TL;DR). It’s about ADHD medication, its history, and PJ’s history with it. It was a slightly unsettling listen for me, given my history. There is a second part coming up, which maybe will tell a story closer to mine. I’m looking forward to hearing it.

In the meantime, here are some thoughts. Clearly the contexts in which PJ and I live are very different, regarding ADHD diagnosis and medication. The US clearly seems to have an overdiagnosis problem, and is generally very pill-happy with anything that has to do with mental health. Just take the pill and off you go. At least, that’s how I perceive it, seen from Switzerland – where ADHD is sorely underdiagnosed and even when it is, getting medication is far from easy.

PJ tells how after 20 years of taking various ADHD meds (+ antidepressants), since he was a teenager, he went off meds following the advice of his new psychiatrist to see how things would go, and figure out what was necessary. He’s still off them (a couple of years later, if my memory hasn’t been digested by my microbiome). And he has had a chance to discover – and like – the way his brain functions without. The podcast also walks us through the early years and decades of amphetamine and the search for a condition it could be the answer to. Initially an attempt at managing asthma, it turned out to not be great at it. So, there is this underlying idea of drugs looking for illnesses. In the early seventies, amphetamine (+ methylphenidate) became tightly regulated and stopped being authorised to treat depression. And that’s when ADHD diagnoses started to become more common, increasing dramatically over the next decades.

Now, nobody here is saying ADHD isn’t a real thing. However – and this is an issue I’m acutely aware of – it is a clinical diagnosis. It means that how you perform on this or that test does not determine if you have ADHD or not. What counts is the impact it has on your life. Does it prevent you from functioning, and to what extent.

PJ tells us he initially went through a series of psychometric tests, and it turns out he was below the threshold for the number of criteria required for a diagnosis (he discovered this whilst fact-checking the episode and reading through his initial medical report for the first time as an adult). One should note that diagnostic criteria evolve with time – those in the DSM-5 do not exactly match those in the DSM-IV. This means that “having ADHD” or not does contain an element of arbitrariness and subjectivity to it. Also, as it has to do with the capacity to function, one person could exhibit sufficient ADHD traits in one context, and not in another. It is not like the influenza or covid, where you “have it” or “don’t have it”.

It’s more like hearing loss, where there is a continuum starting with normalcy, and somewhere there is a cut-off point where the inability to function in the subjects life requires outside measures to compensate. I really like the parallel with hearing loss, as this is an issue I also have to deal with. Let’s dive in there.

I was born with hearing loss. I was born with ADHD. In both cases, they are not severe. I functioned for 13 years before knowing I had hearing loss, for 38 years with hearing aids, and for 47 years without knowing I had ADHD, and without medication.

As far as my hearing loss is concerned, if I live a life made up mainly of one-on-one interactions, with people who do not speak too quietly, if I don’t have to follow too many discussions with multiple people (particularly in noisy places or places with bad acoustics), if people around me take the trouble of coming up to me to speak instead of trying to communicating from the other room, and if my pace of life is mellow enough that I can recuperate from the extra effort I make in many social situations, I can live without hearing aids. And maybe, even, without “hearing loss”. When I am alone at home, my hearing loss doesn’t have much impact on my life. But I need to work, I want to have a social life, I want to have easy interactions with strangers and be able to communicate with soft-spoken people. At one point I was tired of struggling with all that, and took the plunge to get myself fitted with hearing aids. I have never looked back.

As for ADHD, maybe there is a life configuration for me somewhere in an alternate universe where it doesn’t have an impact on my life. Maybe a life where I don’t live alone, don’t have to work – or only when I feel like it, am free to fill my days with exciting things, have support for dealing with housekeeping, admin, troublesome emotions. And in a way, there have been times in my life where my life was rather well-adjusted to how I function – when I was self-employed, for example. Without really realising to what extent, I had built a career for myself which made excellent use of the particularities of the way my brain works. But as with living with hearing loss without hearing aids, it also came at a cost: missed opportunities, extra unrecognised efforts for the same accomplishments, and yes, pain, isolation and exhaustion.

I’m going through this because there is some vision of disability that leans towards “there is no disability, it’s just that we live in a world which is not adapted to our needs, abilities, or specific ways of functioning”. It comes in different shades and intensities, of course, but from my point of view, although obviously we must strive towards inclusion, it is normal that society is built to function with the “normal” in mind. It is normal that people expect me to hear when they are talking from the other room, because that is what works with the overwhelming majority of people to interact with. It is normal that people expect others to be able to be roughly on time at a meeting, because most people are able to. It is normal to write text in size 10 to 12, because most people are capable of reading at that size. Again: I’m not arguing we should not be inclusive, but I do think that there are objective differences in individuals’ ability to participate “normally” in the world we live in, and that it does nobody service to negate disability with ideas like “you shouldn’t have to take meds to be able to work and manage your household, society should adapt to you”.

Anyway. ADHD is a real thing. It’s not a black-or-white thing, but it is a neurodevelopmental disorder, it has a basis in physiology, and it can be more or less severe, and for similar “objective” severity, it can create big problems in one individual’s life and hardly any in another. I am saying this because when the discussion turns to ADHD and medication, or other neuropsychological or psychiatric conditions, there is always somebody to say that you should eat less sugar, do more yoga, tell society to go f*** itself, give yourself a kick in the pants, try harder, and also, taking meds long-term can’t be good for you.

That being said, what I really want to write about is how disturbing it is when you realise that taking a pill can change your life. Because that is what happened to me. I only have a couple of years of hindsight (who knows, maybe I started taking my pills when PJ stopped taking his), but the change is shocking for me. I went through years (approaching decades) of therapy way before I suspected I might have ADHD. I figured out a lot of stuff, sorted through it, grew a lot, came up with an impressive amount of what I now understand are coping strategies for ADHD. But my life was still collapsing. And taking a pill changed it pretty much overnight.

Five years ago, I experienced the real shock of understanding how much chemistry could transform what we think of as psychological. I had rather nasty vitamin D deficiency. After a couple of weeks of supplementation, my mood had lifted, I had stopped feeling tired and down all the time, life seemed to make sense once again. Because of a vitamin. A few years later a colleague told me how vitamin B deficiency had made her suicidal before they understood what was going on with her. We like to think that the mind conquers the body, but as an upset stomach in India can remind you, it’s more often the other way around.

Twenty years ago I was dead against taking any kind of psychoactive medication. Life put me face to the wall a couple of times and I revised my position. I still think drugs should come with therapy or counselling. Just like when you take antibiotics for an infection you’re also going to rest, if you’re on blood pressure medication you are also going to do what you can with your lifestyle to not make it worse, and if you need glasses or hearing aids you also learn to do things like sit in the front of the class, pick a quiet restaurant if you’re going to have an important conversation, and take care to preserve your eyesight or hearing.

I see two important reasons which, for me, explain why there is so much negativity around taking medication for psychological issues. First, our culture does think mind and body, spirit and physical, as separate. Taking medications that help your brain do its work better, and have an impact on what we think of as “me”, well, that kind of negates this separation of mind and matter. So it’s uncomfortable.

Second, we know enough about the placebo effect to be wary of it, but not enough about it to really understand what it does and how it works (to say nothing about how it is a key element of a double-blind randomised clinical trial). So, the assumption is “it’s all in your head”, right, you’re feeling better because you took a pill that you think is going to make you better. Improvement of psychological symptoms is not as simple to measure objectively as an infection or fever disappearing.

What makes it worse is that after some time, one gets used to the “new normal” with the medication. I have no temptation to stop my blood pressure medication because my blood pressure is well-controlled and I start to wonder if the medication is actually doing something. But life with ADHD meds, yeah, it feels all normal now, and sometimes the doubt creeps in. Do I really need these meds as much as I think I do? Was it really that bad “before”? I recognise that doubt for what it is – it happens with my hearing aids too. It’s super easy to check, however. I just have to try and go to work one day without my hearing aids and I’ll see how bad it is. Nobody will say “you’re struggling because you know you’re not wearing your hearing aids”. If I do the same thing with my medication, of course that will be the obvious assumption: it’s in your head.

For what it’s worth, I once went to a concert with people from my singing group without my hearing aids. Completely forgot them. And didn’t know I’d forgotten them. As we were waiting to go in, and I had a few exchanges with the people there, I couldn’t help but gradually notice how bad and muffled the acoustics in the hall were. I really had trouble understanding what people were saying to me. I thought it was the room. I only realised it was the absence of hearing aids when I reached up to press the button that allows me to increase the volume.

This has happened to me a bunch of times with my ADHD meds. Every now and again (rarely) I’ll forget to take them. (Scoop for people lamenting about these “horrible addictive meds”: people with ADHD regularly forget to take them… draw the conclusions.) I find myself faffing around, or having a really hard time getting something done at work or at home, and after an hour or so it slowly dawns on me… wait… did I take my meds?

Of course I wonder if I “lost” anything in the process of going “on medication”. I can clearly see what I gained. I’m happier, I’m able to do things, my mood is more stable, emotions are more manageable, my friends tell me I’m less scattered, I’m tired in the evening and actually want to go to sleep, I’m functional in the morning. I’m making plans for the future. But have I left anything behind? When you lose your hearing, what you don’t hear doesn’t exist. You don’t know that you’re not hearing the things you don’t hear. So, do I know what I left behind, if anything, with medication? Will I be like PJ in ten years, going off meds and rediscovering aspects of myself I had forgotten existed? Right now I’m happy with how things are, and have no objective reason to be concerned. But my mind wanders around and goes places, by curiosity, and this is one of them.

I’m looking forward to listening to the next episode.

Projets rando 2024 [en]

Depuis l’année dernière je fais des projets. J’organise les choses que j’aime faire. J’ai une liste des randonnées que je souhaite faire, et je bloque des dates dans mon agenda pour ça. Banal? Nouveau pour moi.

Et là, on va un cran plus loin, parce qu’avec un emploi stable, je peux même planifier mes vacances!

L’ascension du Kilimandjaro, ça peut faire rêver, mais comme je suis pas prête je vais me contenter de faire le Tour du Mont Blanc. Avec une copine, on s’est dit un peu comme ça “allez, en 2025!” Défi lancé. (Si ça te fait rêver dis-moi, on s’est dit qu’on pouvait y aller à 4-5 si on avait des copains-copines qui voulaient se joindre à l’aventure.)

Actuellement, je fais des randonnées sur une journée, avec pas trop de dénivelé (1000m c’est déjà “pas mal” pour moi). Les deux cabanes que j’avais prévues cette année sont malheureusement tombées à l’eau pour des raisons indépendantes de la volonté de tous les acteurs impliqués: La cabane de Plan Névé (objectif Col des Chamois, dont le nom me fait rêver depuis des années) et la cabane des Marindes (Vanil Noir). La fin de saison approche, donc il va falloir réagender ça pour 2024. Parce qu’en 2024, il faudra effectivement que je m’habitue à aligner des jours.

Projets, donc:

…En plus de mes envies déjà en place d’aller voir un max de glaciers tant qu’ils sont encore là, de mettre le pied sur des chemins blanc-bleu, et de profiter des occasions qui se présentent spontanément à droite et à gauche. Il va falloir réserver des plages dans le calendrier.

Cette année je me suis remise à la via ferrata. Enfin remise… j’en avais faite une, il y a quinze ans. J’avais adoré. Quand l’occasion s’est présentée cette année, je n’ai pas hésité! L’année prochaine, j’achète le matériel et je continue sur ma lancée.

Un autre projet pour 2024 c’est d’aller faire le Dales Way (récit et photos pour rêver). C’est une randonnée “douce” d’une semaine environ dans le nord de l’Angleterre, là où j’ai mes racines britanniques. C’est magnifique. J’avais envie d’aller cette année mais j’ai finalement changé de plan. Et là, je me dis que ce sera une bonne façon de marquer mon demi-siècle (si, si, amis et famille: save the date du dimanche 7.7.2024, je vais faire “un truc”), et d’aller faire ça la deuxième ou (plutôt) troisième semaine de juillet.

Et vous, vos plans rando, c’est quoi? Ou si c’est pas la rando, votre truc en plain air dans la nature, c’est quoi?

It’s Already September [en]

Started writing 05.09.2023

Reading Mark’s recent post prompted me to open up WordPress and type something.

My stepmom Monique died two weeks ago. She had been my dad’s wife for the last 20+ years and a person I really cherished. It was sudden, although she had been ill for years, but stable. In the space of a week we went from “coming home from this hospital stay tomorrow” to “it’s the end”. Although I know there is no right or wrong way in grief, I do not feel like I’m dealing well. I do not want this new world without her.

I had recently found increased confidence and stability at work, after my holidays, constructive discussions with my boss that eased some of the pressure I was putting on myself, and some tweaks and adjustments to my self-organisation. I struggle all the more with accepting that I need to cut myself some slack. I’m taking the measure of how much I pressure myself to perform well – even though intellectually I do not feel like I’m giving in to it, emotionally it is still there.

Over the years, I’ve often dealt with grief by writing through it. But this grief is not just mine. I mean, I am not alone in having to deal with Monique’s death. And this makes things more complicated. I plan to post a written version of what I said at her ceremony at some point, however. But I feel stuck, in many ways,

So stuck I abandoned this post for a week. Picking it up again after stumbling on this post by Annette.

It’s Monday afternoon. Doctor’s orders, these last three weeks I’ve been partly off work. Though I struggle with accepting that, as mentioned above, I can feel it was (is) needed. I’m slowly starting to feel somewhat “normal” when it comes to dealing with daily life, and a bit of (easy) work.

But I don’t have any bumpers, extra bandwidth, suspension, or whatever other image might work to express that minor complications of life see me on the verge of “OMG I can’t deal with this”. I’ve not only lifted my foot of the gas regarding work, but regarding pretty much everything that requires an effort on my part, to give myself space to recover. I’m “OK”, but not my usual OK. My bike fell down this morning (clumsiness) and the onboard computer wasn’t working anymore when I put it in place. I didn’t melt down, but the idea of having to deal with bike repairs (maybe a day or so without my primary means of transport) filled me with dread and despair. Luckily it was “nothing” and a quick stop at the repair shop solved it. It’s just an example. Life is full of such “little-big problems”, and usually one groans and deals with it. In my case, today, I was happy I didn’t end up crying in front of my bike when it wouldn’t start up.

Back to grief. I’m past the “burst into tears at bad moments” days. But I’m still in this weird space where I’m living as if Monique’s death is a bad situation that is going to resolve itself. Like, it’s temporary. Of course I know death is very, very much not temporary, but I seem to have trouble truly convincing myself. I feel like I’m on hold, in some no-man’s-land between shock and a deluge of emotions I really don’t want to have to face. All this is bringing back a whole lot more than “just” my mother’s death, which is the obvious parallel to draw. Details maybe some other time, or not. We’ll see how I process all this.

So, here are a few things I could be writing about but don’t really have the energy for right now. If you’re curious, ask me, and it might give me the impulse to continue, who knows. I could write about the two-week hypnotherapy introduction course I took this summer, and what a life-changing experience it was. I could write about how much time I’m spending at the chalet, and all the hikes I’ve been on, including a recent via ferrata. I could write about being back on track with judo, losing 10kg last year (on purpose) and how happy my (otherwise unhappy) knees are about it. I could write about singing, about making difficult but much-needed decisions, about using Asana, about balancing the need to follow impulses and stick with the programme, about the new boat and taking it out alone for the first time today, about Oscar and managing a support community for diabetic cats, about navigating a multilingual work environment which sends me back to topics I spent a lot of time thinking about back in 2007-8, when I did what I call (in my personal biography) my “Babel Fish Conference Tour”, I could share some poetry and write some more, or write about trying to get a coworking space back off the ground in 2023 while working in another city, even tell you more about how I’m making sense of the story of my life right now (thanks As’trame).

I feel bad about not writing about all this. Frustrated, because I like writing, and sharing, but also guilty-bad because in a complicated way it also has to do with all these things I feel I have to “do for others”. Because I’m good at them. And, again in a complicated way I might try to explain someday, but that maybe some of you will understand immediately, it has to do with the meaning of life. The meaning of my life. And of life in general. Especially when the biological “meaning” of life (to perpetuate itself) is absent from yours.

So here we are, early September coloured by death and multilayered sadness and pain and fear, from the simple grief of having lost somebody I loved to the meaning of life, sitting on my balcony with my cat, trying to keep pressure and others out of the equation of my life for a little moment more.

I’m off to judo.

“I Will Adapt” [en]

A few years ago (don’t ask me exactly when), I started watching Star Trek as my “goodnight” TV series. I chose it because it was entertaining enough but not so fascinating that I would stay up watching episode after episode. Well, that worked out pretty well for TOS and the early seasons of TNG, and completely broke down with DS9 (do watch, if you haven’t yet). But still, by that time, I’d gotten better at “just saying no” to “just another episode”. I’m currently making my way through Voyager and am hugely enjoying the developing character of Seven of Nine.

Hence the title for this blog post: “I will adapt”, which I have heard her say many times these last days.

What will I adapt to?

For the first time in my life, I feel like I have a hold on my future, instead of being swept this way and that by the whims of life. Two major life changes explain this:

  • ADHD diagnosis and treatment – seriously, this is like finally getting admin rights to the operating system my life
  • a stable (employed) job for the foreseeable future – something I haven’t had in a very long time, between self-employment, short-term “this’ll do for the time being” positions, and unemployment.

I’ll probably get more into this in a future post, but one of the effects of ADHD for me is that I was caught in a “permanent present”, slave to immediate gratification and impulses. I definitely harnessed this way of functioning to make the most of it. I built a 10+ year freelance career out of it, a huge network, knowledge, expertise and skills in all sorts of fields, and more. I have been (am) an expert at seizing the opportunities that present themselves. Having a long-term objective and doing things to reach it was, however, pretty much impossible. Short-term planning, yes. Project management, yes – because I have to “project manage” pretty much everything I want to do. So my career went where the winds took me, and my personal life and ambitions lacked a sense of direction – though I always did know what I found interesting and what I didn’t.

This means that now, concretely, I am in a situation where not only do I have a pretty clear vision of what available time I have “for myself”, but making plans for these moments is a lot less daunting. I have 5 weeks of holidays this year: I’ve put them down in the calendar, and thinking about what I want to do/where I want to go for each of them does not fill me with dread. This kind of exercise used to.

I have week-ends, too, and the ability to make plans for them. This week-end I’m at the chalet. Next week-end I’ve saved a day for a hike. I write these things down in my calendar and I follow through, with way less effort than it used to take.

That is the positive change I’m adapting to. Being able to make plans. Even for next year! I’ve been wanting to go to Thailand for a long time, and now, between the job stability and my new-found ability to project myself in future activities, I can say things like “hmm, in 2024 I’m going to use two of my vacation weeks to go to Thailand”. For example.

The more difficult changes I’m adapting to is how “little” time I have outside of work. One of the aspects of my hyperactivity is that I am never short of ideas, projects, people to see or new things to discover. Previously, I had more available time, but my ability to actually use that time for things I wanted was impaired. Now, I am able to be much more productive with the time I have, but… there are a few buts.

First, I’m working four days a week, and work does tire me (surprise). So, I need to rest (another surprise). I have evening activities (judo, singing) 3-4 days a week. Does that already sound like a lot? I’m just getting started…

Basically, my “new life” is very clearly confronting me to the fact that I have to make choices and that I cannot do everything I would like to do. This is life, it isn’t news, of course, but for me, in my “old life”, this wasn’t so much of an issue. In a weird way, because I was pretty much always stuck taking what was in front of me, I didn’t have a clear view of how unrealistic my aspirations were. I was always failing, but also always doing-or-trying-to-do, and on the forefront was a state of constant frustration and overwhelm that I wasn’t managing to do where I really wanted. I was, generally, quite unhappy.

So, now I can see clearly: if I’m doing judo and singing four nights a week, and managing a very busy support community on Facebook, and trying to go to the chalet and ski in winter, hike and take the boat out in summer, in addition to working 80%, managing my household and admin obligations, and getting the rest I need… that doesn’t leave much time for keeping up with people I’m not otherwise seeing through shared activities.

RIP my social life.

This really sucks. I’ve always had a huge social life, lots of friends, and already before, too many lovely people I want to keep in touch with on a regular basis. But now it’s worse on a whole different level. I already struggle to keep to seeing my family from time to time.  But I have to accept that with the choices I’ve made and priorities I’ve set, I have less time to socialise and maintain friendships, less time to “hang out”, less time to dive into new exciting projects, less time for the unexpected.

I will adapt.

Life as an individual has its challenges, but despite all, it definitely beats being a Borg drone.

Regarder passer le monde [fr]

En anglais, on dit “watching the world go by”. J’aime beaucoup cette expression. Elle sent les vacances, le repos, la sérénité de celui ou celle qui peut se permettre de s’arrêter un moment, perdu dans ses pensées, regardant sans vraiment regarder ces instants de la vie des autres qui défilent devant soi.

J’ai fait ça aujourd’hui. Je suis allée au parc, me poser sur un banc. L’idée m’est venue après un repas sur le balcon d’une voisine, qui habite plusieurs étages au-dessus de moi. Depuis son balcon, on voit la vie du pâté d’immeubles, les gens qui vont et viennent, les voitures qui passent, s’arrêtent, repartent. Depuis le mien, j’ai plutôt une vision un peu myope de ce qui se passe juste sous mon nez, dominée par un grand arbre plein de feuilles.

Regarder passer le monde. Regarder défiler la vie. J’ai réalisé que j’avais peu d’opportunités de faire ça. L’oisiveté ne me vient pas facilement, et je me rends compte qu’il est important pour moi de cultiver des “temps morts”, pour me reposer, me ressourcer, récupérer.

Même quand je ne fais rien, quand je ne veux rien faire, je suis comme tractée vers l’action. La vie numérique dans mon téléphone, évidemment, mais aussi lire, écrire, photographier, documenter, observer attentivement, cogiter… Ça m’est arrivé, dans le parc. D’abord, j’ai éteint le podcast que j’écoutais en marchant. Après quelques minutes de rien, j’ai voulu enregistrer mes réflexions et impressions. J’ai pensé à quelque chose qui nécessitait l’envoi d’un message à une connaissance. J’ai fait un effort explicite pour ranger mon téléphone dans mon sac, et juste regarder autour de moi. J’ai eu rapidement envie de prendre mon carnet pour écrire. Je me suis retenue. J’ai regardé passer les gens et les pigeons, regardé les bateaux minuscules sur le lac, humé l’odeur de l’été, et laissé mon esprit vagabonder.

Je me suis dit qu’il fallait que je revienne. Que peut-être, une fois, je fasse le saut de venir sans téléphone, ni cahier, ni appareil photo. Ce n’est pas évident comme idée, surtout de venir sans appareil photo.

Ça s’est plutôt bien passé, en somme. J’ai pu apprécier d’être là et de ne rien faire. C’est assez étonnant pour moi, de pouvoir faire ça. Toute ma vie, j’ai été courbée sous le poids de cette longue liste de choses à faire que je n’arrivais pas à faire. Un poids coupable qui venait appuyer sur mes rares moments de répit, parce que je devrais plutôt d’abord faire ceci ou cela. Et me reposer ensuite. Mais je savais bien que je ne pouvais jamais en voir le bout, de cette liste de choses à faire. Je n’arrivais même pas à entamer le début.

Depuis six mois, tout a changé. Je “gère” enfin. La liste existe toujours, elle est toujours longue (et le sera certainement toujours, merci hyperactivité). Mais j’avance. Les choses importantes et urgentes sont faites. Et même plus. C’est sous contrôle. Je n’avance peut-être pas aussi vite que je voudrais, mais j’avance, je vois où je vais, et je sais qu’il n’y a pas d’horribles mauvaises surprises qui m’attendent au détour d’un chemin. J’arrive maintenant à prendre du temps pour moi, du temps de repos et de plaisir, sans mauvaise conscience. C’est une libération.

Mais voilà, je suis encore en train d’apprendre à faire ça. C’est nouveau. Malgré moi, je me retrouve souvent un peu automatiquement à faire. Et mon cerveau a besoin de passer plus de temps en mode par défaut, j’en ai conscience. Juste là, me poser sur un banc au parc semble être une bonne piste.

How Your Struggles Can Shape Your Strengths [en]

How come I am so good at setting priorities in a work context, or helping others sort through their priorities, when I can spend a whole Sunday faffing around because I can’t decide what I want to do the most?

When it comes to my personal interests, I struggle with setting priorities. There are so many things I would like to do! The world is so interesting! Which book do I want to start with? Will I write or work on my photography? Shall I spend time on refining the documentation for my existing support group, or dive into a new communications project on the margins of that community? I’m sure some of you can relate.

So, I tend to view myself, internally, as somebody who has trouble setting priorities. But that is not how others see me. They often see me as decisive, clear-headed, rapidly capable of teasing out what needs to be done first or what is most important.

How come?

As with many things in life, it is my personal struggles that have honed these skills. I have spent an immense amount of energy trying to figure out how to help myself decide if I would rather go for a walk on my free day or sort through my holiday photos (two activities I enjoy). I have come up with countless strategies to break down projects into manageable tasks, and determine what must be done before what. I have spent hours thinking through the consequences of doing or not doing, so that where to start would become clearer. Because if I do not take the trouble to do this, when I’m alone with myself and with few constraints, I tend to slip and slide.

So, I have had a lot of practice doing this, because it didn’t come naturally to me. I’ve had to think it through. I’ve had to devise methods. I’ve done it again and again and again.

Put me in an easier setting, like work or facing somebody else’s priorities: I have a huge toolbox, and I probably don’t even need to use all of it.

The very fact that I have a personal struggle with – in this example – setting priorities in my personal life means that I have developed strong skills in that area. Skills that are an asset in my professional life.

Think of a young man who has to carry a heavy load of rocks on his back everywhere he goes. He might struggle compared to his peers when they go hiking. He may actually stumble and risk falling more, he will be tired, he will be slow. But if he can put down the load of rocks to go and run an errand, he will be the quickest and the strongest of them all.

What superpowers do you have that were born from your personal struggles?

Changes in the World, Changes in Us [en]

These last few years, I’ve come to a slightly unsettling realisation: there are changes happening in the world around me that I’m far from enthusiastic about. It’s not just “The Shattering” I wrote about recently. It’s also small things. A restaurant I liked that isn’t there anymore. Part of the ski resort I liked that has been closed. A holiday spot that is now damaged beyond repair. My GP retiring. There is a common thread: parts of my world that I appreciated, and relied on, often for years, and which are coming to an end before I am.

This has got me thinking about how we relate to the world, and how it has to do with the ages of life. Remember what Douglas Adams had to say about how we relate to technology, according to how old we were when the technology in question appeared? Something like that.

When we are children, and teenagers, and even young adults, we seem to be changing much more than the world around us. We’re growing up, one year after the other, learning things, earning freedoms and responsibilities, discovering how the wold is and works. We see ourselves as evolving, and the world as something rather stable, outside of us, which we are excitedly discovering and understanding better with each passing year.

At some point this shifts. We become adults, we’ve gained autonomy, we’ve pretty much figured things out. Of course, we never stop “growing up” and learning. But there comes a time when we start viewing ourselves as more stable and the world as more changing. As years turn into decades, we might even catch ourselves thinking “it didn’t change this much before, when I was a child/teenager!” But of course it did. We just didn’t see it, because what was moving in the world was drowned in our ever-moving perspective on the world, discovering and discovering and discovering.

It’s logical: there is less change in us between, say, ages 35 and 45, than between ages 15 and 25. At 35, we’re fully active participants in the world. As we are at 45. And that allows us to be hit head-on with “what has changed” in that decade.

So I think back to my childhood, teenage and young adult years. I remember everything I saw in the world that seemed normal, that was simply “the way the world was”. Sure, I was already seeing changes. The CD. The internet. TV remotes. Cars changed. Houses were built in the neighbourhood. A new ski run opened. The price of stamps went up. All those changes were astonishing and exciting: wow, things change in the world! There are new things, and I’m here to see them!

But my normal at the time was “oh gosh how the world has changed, how I regret xyz” for many people who had been around a few decades longer than I had. And now it’s catching up with me.

The Shattering of my Faith in Our Future [en]

I was always very optimistic regarding the future of the world. The resilience of civilization and humanity. The faith that in the long run, things would turn out OK.

I had some of this optimism for myself, too. Faith that things would improve. That bad times would pass. That I would end up finding a way.

It has served me well.

But this is not about me. This is about the world. When I was younger I wanted to believe in God. Or at the very least, in some spiritual realm that gave meaning to life and all that goes with it. I failed at believing, and at some point came to terms with it.

The world is as we see it, matter and energy as defined and measured by physics. There is magic in my world, but that is a topic for another day. It’s probably not the kind of magic you imagine.

I believed in some kind of self-regulation of the huge systems that are our societies, and even humanity as a whole. I believed that things could not, on a global scale, become fundamentally worse. That there would only be improvement, even though we would witness what looked like setbacks.

I do not believe this anymore. I have lost my optimism, over the last years. My faith has been shattered.

It started with Brexit, and the election of Donald Trump. Those were the big blows. I did not see either one coming, comfortable in my little idealistic bubble. Oh, I knew they were on the table, but I never in a million years believed they could happen.

After that, I would often think, or say, “remember Iran”. You know, those photos from the seventies? Yes. And now. Things can get much worse. Things can go “backward”. Meaningful freedoms can be lost.

Of course all this also has to do with my age. I’m closer to 50 than 40 now. When you’re a young adult, the world you’re living in is the world you’re most familiar with. Your child and teenage eyes turn into adult eyes, and you finally see things as they are, you think, doors open in front of you and you walk forward in life, hopefully with a smile, but at least with a sense of order in the world. Well, that’s how it was for me, in any case.

When you’re in your forties, you see the world change. You slowly use the world of your youth, the one you thought was “the world how it is and is supposed to be”. As years go by I find myself slowly starting to struggle with some of the changes our society is going through. I find myself looking back upon the “good ol’ times”. I pinch myself when that happens.

Brexit and Trump also finished shattering some of my beliefs about technology and the resistance to exploitation of the systems built upon it. I was aware, of course, of the plague of those who would always try to “game the system” in social networks. But I never thought – or wanted to see – that the real-world, political implications, could be so dire. I saw what good could be done, but closed my eyes to the evil. Optimism. Blame the seduction of the full half of the glass.

Then there was the pandemic. If Trump’s election made me fear for the turn our world could be taking when it came to politics, and the value of Truth, the pandemic was here. Here, there, and everywhere. I had seen things going on in Wuhan, but naively didn’t think it could hit us. It hit us hard. It hit me hard. I remember. I was at my chalet with a friend. The first cases had been detected in Switzerland. Friday, March 13th, 2020. We watched the federal government’s announcement. Schools closed. That shook me. It shook me badly. I remember thinking that the world as we knew it was over.

That was two years ago. Here in Switzerland, for most people, we’re gently trying to drift back into the “normalcy of before”. It’s a façade, of course. We know there’s no going back. But life feels back on track. Not quite, though. As if we were in a slightly alternate reality.

I think of those for whom these last two years were “formative” years. It’s not the same thing to go through two years of pandemic when you’re 45, 25, 15 or 5. I think of those, children in particular, for whom post-covid life will be “just life”. For us, older ones, there is before and after covid. The old world, and the new world. But for children, and teenagers, there will pretty much just be a world after/with covid, when it comes to the story of their lives. Just as for me, coming of age in a world where AIDS was already an established threat, the only world I know is a world where AIDS exists.

The pandemic shook me because or the disruption in our lives, the death, the exhausted medical staff, the economic impact – immediate and long-lasting. We are not out of it. And worse that that, it shook me because it brought home the fact that pandemics were possible. This one was bad. But it could have been worse. And there is no guarantee the next one is not waiting around the corner. Actually, it is – just like this one had been waiting around the corner for decades, jumping from bat to bat.

As if the craziness of the first three years of Trump’s presidency hadn’t been enough to drive home that we were living in a post-truth wold, the pandemic allowed us all, wherever we lived, to witness the damage wrought by cognitive bias, conspiracy theories, and capitalist media together.

And now Russia has invaded Ukraine.

I thought the pandemic was bad and would change our world forever. This is worse. Far worse. I never thought WWIII could happen. Now I’m not so sure. And even if it doesn’t, however this ends, the balance of power in the world is going to undergo a major shift. There will be “before”, and “after”, just as with the pandemic. I was 15 in 1989. I remember listening to “France Infos” radio, which gave news every 15 minutes, as the Berlin Wall and Nicolae Ceaușescu fell. The world felt like it was opening. Now it feels like it’s unravelling.

As I listen to news about Ukraine and cry, I realise I’m also grieving for the world I lost, a world I thought had a certain stability I could rely on, a world where autocrats don’t win, pandemics don’t kill six million people and leave so many others broken, where civilians and maternity hospitals don’t get bombed, and where truth prevails.

This shattering is not easy, as I look at it through the lens of my personal life. But however discomforting it is, it also tells me that I have the luxury of such philosophical considerations, rather than fleeing for my life in the cold and fear, and for that I am infinitely grateful.