Back On The Heat Wave [en]

[fr] L'oeil qui voyait trouble? Pas un coup de soleil, mais un mini corps étranger métallique. Oui, ouille. J'en ai monstre marre de voir flou de mon oeil dominant, juste là.

It was much cooler up in the mountains. Here I am in Lausanne, with another heat wave hitting us. Or the same. I don’t know anymore, this summer has been endless days in survivor mode trying to keep my flat cool. The largest part of my flat faces southwest. As soon as it gets warmer outside than inside, I close everything. I close the blinds so the sun doesn’t heat my rooms through the windows. And late in the evening, when the temperature has dropped a few degrees, and the outside air is finally cooler than inside, I open everything wide.

heat wave 2015

No ceiling fans or AC here. Swiss buildings are designed to keep the cold out.

Remember the fuzzy vision I told you about a few days ago? Wednesday morning I headed over to Lausanne’s eye hospital. I spent most of the morning there. The fun bit is that I got to see two young doctors doing their internship. They were very friendly and relaxed, went through all the preliminary questions, examined my eye, tinkered with the devices in the room (they usually saw patients in another room, they explained, and weren’t familiar with this one), and then went to present my case to the doctor supervising them, who then saw me to close the case.

Turns out it wasn’t too much sun. Oh no. It was a speck of metal dust stuck in my eye, right in the middle. Tiny, a fifth of a millimetre or something. My first reaction was “OMG metal in my eye”, followed straight behind by “OMGOMG you’re going to have to remove it!” The doctor reassured me that this was something they did many times a day and was no big deal.

A few drops of anaesthetic in my eye, some deep breaths (well, I tried, at least) and clenched hands on the handles in front of me, staring straight ahead with my other eye, straight ahead, very important not to move, straight ahead… and that was it. He scraped out the nasty little thing from my eye. Oh, and a tiny layer of my cornea, too, he explained. (Luckily I’ve had enough feline eye adventures with Sir Quintus that this didn’t alarm me. But still.)

So, now I’m left with gooey antibiotic drops (we don’t want an infection there) and still-blurry vision. It’s really making reading (on-screen or off-screen) difficult and frustrating. The blurry eye is my dominant eye, otherwise it wouldn’t be so bad. It still hurts a bit at night, but hopefully the pain should go away in a few short days. I don’t know about the timeline for the blurry vision, and it’s starting to distress me. The nurse on the hotline suggested I give it the week-end and come around on Monday if it was still bad. At this stage what’s going through my mind is “I hope I get all my vision back at some point” and “I hope it doesn’t take too long, because it’s starting to impact my ability to work”.

Fuzzy Vision [en]

[fr] Encore du vrac!

Watch, if you haven’t watched it yet, the video on managing unconscious bias at Facebook.

And, just because I thought of it right now this second, this documentary on Yusuf Islam, the artist formerly known as Cat Stevens. He tells a very moving story of his religious journey, from the early days when he was “a pop star” to now. (Remember the “Salman Rushdie incident“? Not surprisingly, it’s not what you thought it was, just like the story of the lady suing McDonald’s for spilling hot coffee on her lap is not what you thought.)

“Note to Self” was formerly called “New Tech City“, and it’s a podcast on the human side of the digital world. Exactly what has been of interest to me these last fifteen years. I recently liked this episode about reading. There are two different types of reading skills we need to develop in today’s world:

  • slow reading: the type we learned at school and practiced before the internet. Reading a novel. Reading complex, complicated stuff we need to digest.
  • skim & skip reading: the type we do online, always interrupted, always jumping off to something new, going through large quantities of information quickly.

Both need training. But our brain adapts to the second type so well… we need to remember to practice the first type. It will come back. I still read books (Kindle…) and I’m going to make sure I set aside some regular phoneless reading time in future.

Hiking yesterday, I realised that there really is a technique to walking on a mountain trail. Specially going downhill. I don’t know how I learned this, if somebody taught me or if I figured it out alone. Shift weight gently, don’t just dump all your weight on the next foot as soon as it hits the ground. Do it in a way that you can backtrack if you start slipping. Remember your knees (and ankles) are there to absorb shock (too many concussions have taught me to be sensitive to this). So bend your knees. Don’t plonk your foot down with a locked knee.

Vue depuis le Chamossaire

And when it’s too steep, or there is a really big step to go down, and your back leg is not willing (or strong enough) to let you down gently? Squat first on both legs. Then take a step down from that squatting position. Easy!

Fuzzy eye? Articles need titles, don’t they. I seem to have managed to sunburn one of my eyes two days ago, and my vision out of it is still fuzzy. Probably nothing serious, but as it’s about an eye, I’ll do what my vet says and not mess around. Doctor today or tomorrow.

A Patchwork Post From The Chalet [en]

[fr] Plein de choses en vrac. Y'a des liens qui mènent vers des trucs en français.

I keep falling into this trap. I don’t blog about something because there is something else, more important, that I should blog about before and haven’t got around to writing.

In this case, it’s the fact that just over a week ago, I finally got to see Joan Baez live on stage. I’ve been listening to her since I was seven or so. I know most of her songs. I’ve always listened to her. And a few years ago I decided that I should really go and see her live soon, because, you know, she’s not getting any younger, and at some point people who spend their lives touring and singing on stage might decide that they want to stay at home and paint instead.

Joan Baez at Paléo

And she was coming to Paléo, in Nyon, just next door. I think I cried during the whole show — not from sadness, just from too much emotion. I was glad to be there that evening, because it was the evening to witness, with Patti Smith and Robert Plant, too. Isn’t it strange how somebody can be such an important part of your life (the soundtrack of many of my years, like Chris de Burgh) — and yet they have no idea you exist?

If you’ve never listened to Joan Baez, just dive into YouTube.

During the drive to the chalet a story came up on the podcast I was listening to which is exactly about that. The Living Room, a story from the podcast Love + Radio, which I’m going to add to my listening list as soon as I have a good enough data connection.

I finished reading “So You’ve Been Publicly Shamed” by Jon Ronson, after devouring “The Psychopath Test” these last weeks. It’s a great book. Anybody spending time online should read it. It’s important. With great power comes great responsibility, but we the people on Twitter and Facebook are not aware of the power we wield. The power to destroy lives. To get the gist of it, use 17 minutes of your life to watch Jon’s TED Talk.

My reading of this book coincides with the unleashing of online fury over the killing of Cecil the Lion. It has disturbed me deeply. I feel an urge to dig through my archives and see what my reactions to Jonah Lehrer and Justine Sacco were, because I remember the stories. I’m worried of what I may find. I will be watching myself closely in future.

I also find myself shy in speaking up against those piling on against Cecil’s killer. Oh, he has done wrong. And I have no love for hunters, and no love for hunters of big cats. But what is missing here is proportionality. And I am scared that by speaking up I will find myself faced with a wall of “you’re either with us or against us”, ie, if you don’t join the mob then you’re defending the killing of lions. Just the way last year I was accused of “encouraging pedophiles” and whatnot because I was opposed to a stupid piece of “anti-pedophile” legislation. To some extent, I feel like I have let myself be silenced. Parallels to be drawn with the harassment episode I went through earlier this year (more on that, someday, probably).

This interview of Jon Ronson for On The Media also gives a very good summary of his book.

(My only gripe with Jon Ronson and his book is that a blog is not a post, dammit!)

Two local newspaper articles made me react today on Facebook (they’re in French). One about “the ideal age to conceive” for women, and one about a carer who got bitten by a Komodo dragon at the Lausanne Vivarium.

The first made me jump up because alongside statistics saying “if you want three kids you should get to work at this age” we find things like “you still have a 40% chance of conceiving at 40” and “don’t worry, it’s still quite possible to have children after 37”. Well, at 40 your chances of success through IVF are more around 10-15% — I’m curious where that “40%” comes from, and what it’s supposed to mean. Certainly not “4 attempts to conceive out of 10 succeed” but more “4 women out of 10 who are ‘trying’ (define that) succeed”. Another topic that’s keeping me from blogging about other stuff, because I have so much more to write about not having children. Well, you’ll get it in tidbits, it seems.

As for the second, well, I was expecting a “scare” piece. “Look, the dangerous animal.” Or “look, another negative story for the Vivarium” (which was running out of funding a couple of years ago). To my surprise the article was really good (edit: wow! they seem to have changed the title!), with the carer explaining how she was actually responsible for how the animal had reacted, and that showed how affectionate she was towards it despite the bite. I realised that reading the title had prepared me for “bad journalism”. But going back to it, the title was quite neutral: “Vivarium carer bitten by komodo dragon”. And so I wonder: how could the title have been better? Tricky.

Up in the mountains, in my chalet with almost no data connection, it’s easy to slow down and “do nothing”. A couple of weeks ago I decided I was going to consciously try and do less things in parallel, both on a micro and a macro level. Monotask more, multitask less. Try and keep my number of “open projects” under control. My podcast-hopping brought me to the “Bored and Brilliant Boot Camp” episode the other day. It really drove home the fact that my brain needs downtime. Bored time. And probably a holiday (I haven’t had a “real holiday” (= with no work to do) in much too long, and I’m starting to feel it. How did that happen? I thought I was over that.) So now, I’m paying more attention to where my phone is, and trying to keep it more in my bag and less in my hand, more in the other room and less just next to me.

That’s it for today, folks. My plan is to write again tomorrow. Or the day after. Let’s see if it materialises.

What Is Waiting For Us Around The Corner [en]

As the founding editor of Phonak’s community blog “Open Ears” (now part of “Hearing Like Me“) I contributed a series of articles on hearing loss between 2014 and 2015. Here they are.

A few days ago I stumbled upon a Forbes article about 4 game-changing technologies for the deaf and hard of hearing. I read it with interest, as I keep rubbing shoulders with the tech/startup world, and the moment it intersects with hearing technology, I immediately wonder what the technological future for hearing-impaired people like me might look like (remember my excitement about mimi?)

Without being an expert on either innovation or the hearing aid industry, here’s what I see when I look around. There are startups, like mimi, who approach issues from original angles, and clearly try to disrupt the market. But big companies innovate too.

future-of-hearing-technology

Over the last year or two, for example, we’ve heard a lot about Made for iPhone hearing aids, that will connect directly to your iPhone without a streamer (there’s a price though, not least a battery life of 2-3 days).

Also featured in Yahoo News’s game-changing wearable devices, Phonak’s Roger Pen, a versatile device that makes hearing in difficult situations much easier. I have yet to test it (soon, hopefully!) but I know a bunch of deaf students who swear by it. Less conducive to attention-grabbing headlines than “bluetooth hearing aids”, but maybe more important, there is also Venture, the new platform for Phonak aids. This can seem “softer” innovation, as it is “the next version” (after Quest, which I also tried), but if it is so good you fall asleep with your hearing aids on and forget to use your programmes, isn’t that quite incredible? Not to forget Lyric, a truly invisible hearing aid that you wear 24/7 and change every few months.

Anyway. Back to the article that got me writing today, and the players it showcases, along with my somewhat skeptical comments.

We have MotionSavvy, a tablet and software that translate sign language into spoken language in real time. This sounds really exciting, but can it really bridge the deaf and hearing worlds? I don’t sign, so I’m not certain of the implications of carrying a tablet around and signing with one hand. Also, I know that facial expression is an important part of sign language — will MotionSavvy manage that? I’d be interested in feedback from people who use sign primarily to communicate on how “real-life-useful” this seems to them. From the technology point of view it’s clearly exciting, though. (Update: two MotionSavvy founders + other employees are deaf, so I’m reducing my skepticism a few notches and increasing my enthusiasm about the project — “scratch your own itch” is always a selling-point for me.)

Then there is Solar Ear, which is about getting solar-rechargeable batteries in hearing aids for developing countries. We’ve written a few posts here about the Hear Haiti Project, and I’m certain that in addition to hearing aids the volunteers with the Hear the World Foundation must be bringing many many packs of batteries with them in their luggage. So, clearly, batteries that can be recharged with solar power sound like a great advance. However, there are reasons we’re not already widely using rechargeable batteries in hearing aids. This is above my pay-grade, but I did peek at their specs for the 312 battery (those I use), and I see it’s Ni-MH, which I read in the other article suffers from issues like the memory effect and capacity fading. Have they found a way around this, or do they simply design a hearing aid that can deal with these issues?

Third, ISEEWHATYOUSAY (video). This is a speech-to-text device. You speak a message into your end, and the message appears typed on the other person’s device. This is the less convincing one for me, because I don’t see how it is very different than dictating a text message into your phone for the other person.

Last but not least, in the vein of pimping your hearing aids, Hayleigh’s Cherished Charms. Hayleigh started drawing hearing-aid jewellery when she was little to encourage her classmates to stop hiding their hearing aids behind their hair. Now 16, Heyleigh runs a proper business selling her charms, complete with Etsy store!

I Never Lost My Hearing [en]

As the founding editor of Phonak’s community blog “Open Ears” (now part of “Hearing Like Me“) I contributed a series of articles on hearing loss between 2014 and 2015. Here they are.

Though I find myself favouring the expression “hearing loss” to talk about “hearing that’s not ‘normal'”, it always feels wrong for me.

You see, I haven’t lost my hearing: I just never had it. Well, the part that’s missing. Because there is a sizeable chunk that is there. Give me 60 dB in any frequency (down to 25 in my better ones) and I’ll happily hear.

As far as I can tell, I was born with “hearing like that”. I share my cookie-bite audiogramme with my brother and father, a typical situation of hereditary congenital “not hearing well-ness”.

Saying “hearing loss” makes it sound like at some point I lost my hearing. Like I have a “before” and an “after”, or that my hearing is deteriorating. That I have an awareness of what life with “more hearing” is like. But my “loss-less” story is very different from the stories of loss that others like Stu, Christina, Howard or Angie have been through.

I-Never-Lost-My-Hearing

I have not suffered the trauma of losing. I only have the grief of having never had, and of realising at age 40 how much more difficult my hearing impairment made my life as a child and a teen (even an adult!) during all those years where it was first undiagnosed, then underestimated to the point I just decided to cope, because it was “no big deal”.

But it was, and it’s painful to think about.

I am left with not knowing how to describe myself or my hearing, in terms that are both understandable by others and do not betray my experience of living with these somewhat wonky ears. I fall back on “hearing loss” in English, and “je n’entends pas bien” in French, but they feel like a pair of jeans that is not quite the right shape for me.

This struggle with language is, in my opinion, symptomatic of both the lack of general information about D/deaf/HoH issues in the hearing population, and (related of course) the greater social stigma (leading all the way to denial in some cases) around hearing vs. vision impairments.

Because of our unease around malfunctioning ears (yes, I dare say that), we do not speak gladly of hearing loss/impairment/problems, and the inadequacy of our language is there to remind us of this state of affairs.

We “on the spectrum” are tossing these terms and expressions around, and will continue to do so for a while before they agree to settle.

Until then, we will do the best we can with the words we have — at the risk of being misunderstood.

Hangouts: Watch Me Run Screaming From Dark Green Conversation Bubbles [en]

[fr] Vous avez vu la nouvelle version de Hangouts pour iOS? Texte blanc sur fond vert, donc lisibilité décrue, pour le texte de votre interlocuteur. Révolte! Je reviens à la version précédente...

I’m generally pretty good at dealing with my internal resistance to change when it comes to upgrading software. I know that we get used to a lot of things.

But Google have crossed the line with their new iOS version of hangouts. So, for the first time in my life, I’m actually downgrading the recently upgraded apps on both my iPhone and my iPad. I know it’s not a permanent solution, but maybe somebody at Google will realise that reading white text in a dark green bubble set against a light background makes for a rather unpleasant reading experience.

A picture is worth a thousand words, so head over to this review with screenshots to see what I mean (the one below is lifted from there). Sure, it’s pretty, but what about readable?

old vs new Hangouts

The old version of hangouts served similarly contrasted text for the whole conversation:

  • your interlocutor’s words on a white/light background, with dark text
  • your words in the same text colour but on a light green background, so slightly less contrast (you don’t read your words that much… right?)

Compare to now:

  • your interlocutor’s words are white text on a dark green background, set against the light background of the app (reminder: this is the text you’ll be reading all the time)
  • your text is dark on a light background

WTF?!

Inverted color schemes are less legible.

Too much contrast hurts legibility as much as not enough can. (Yes, the page is old and ugly.)

Check out some research:

From these results, one can say that contrast affects legibility, but unfortunately, it does not seem to be as simple as high contrast being better than low contrast. In the main experiment, GN/Y had the fastest RT’s, and in the control experiment, medium gray, and dark gray had the fastest RT’s. In neither experiment did the BK/W condition show the fastest RT’s. These results show that these participants had faster response times when more median contrasts were used. These results supported Powell (1990), who suggested avoiding sharp contrasts, but did not fully support Rivlen et al. (1990), who suggested maintaining high contrast.

According to a manual by AT&T; (1989), the direction of the contrast (dark on light, or light on dark) might also affect legibility. When light text is placed on a dark background the text may seem to glow and become blurred; this is referred to as halation, and it may make the text harder to read. Some evidence for an effect of halation was found in the current experiment.

(via Coding Horror)

You’d think they would have paid more attention to readability for an app many people (myself included) spend pretty much all day using. How did this get out of the door? And why is it still out there?

Give me a sec while I go grab my pitchfork, I’ll meet you down in the street.

Mood: horrified.

The Hearing Loss Spectrum, Between the Hearing World and Deaf Culture [en]

As the founding editor of Phonak’s community blog “Open Ears” (now part of “Hearing Like Me“) I contributed a series of articles on hearing loss between 2014 and 2015. Here they are.

Since becoming the editor of this blog, one thing I’ve struggled with is the diversity of “hearing loss” experiences we would like to reflect. This is parallel with all the questions related to the minefield of hearing-related terminology, which we’ve touched upon in a couple of past articles. I actually drafted another article on the topic after Christina wrote hers about reclaiming the term “hearing impaired” for herself. But it’s been sitting there because I didn’t feel I was managing to get it right. And because I’m very much afraid of saying the wrong thing on a loaded topic (as I am with this very post).

In what I’ll call the “hearing loss spectrum”, for lack of a better expression, there is a reasonably obvious distinction, the importance of which was recently brought to my attention on a couple of occasions. Not that I wasn’t aware of it before, but I’ve come to a deeper understanding of it — and of its relevance to the editorial line of Open Ears (part of my job here).

The distinction is the following: is your primary means of communication through vocal speech, or signed language? Of course there are people who use both, but for most or us I think, it is one or the other. Is your culture hearing culture, or Deaf culture?

About a month ago I heard that Christine Sun Kim was giving a talk at the MIT Media Lab. Christine is a sound artist — and she’s deaf. Of course this made me curious, and I thought it would be interesting to talk about her work on Open Ears (which I’m doing, actually, by writing this ;-)). Then the “rift” between parts of the “hearing loss” and “deaf” communities was pointed out to me. My initial reaction was “no big deal, Open Ears is about the whole ‘hearing loss spectrum’.”

But in the days that followed, and as I read more about Christine’s work, and watched videos, and explored more about deaf language and culture [PDF], I realised that I was missing something.

Hearing technology (hearing aids and cochlear implants, mainly) is about making it possible for those who want it to take part in hearing culture as normally as possible even though their “lesser hearing” makes this difficult, to varying degrees. In that respect, this blog is clearly about the hearing world.

A couple of weeks later, I met a woman whose son is deaf. He can hear very loud sounds (ambulances etc.) with the help of a powerful hearing aid, but that’s it. They sign, of course. She was telling me about how extremely difficult our Swiss ideal of “total integration in the classroom” was for deaf kids (like asking little hearing kids to take part in a class full of telepaths).

Her story kind of drove home for me how very different it is to be part of hearing or deaf culture — deafness here as a linguistic and culture minority: the Deaf.

And so, yes, there is a whole spectrum of hearing loss. But at some point there are two worlds that are culturally different and communicate via different mediums (oral speech or sign). To some extent, they are related to degrees of hearing loss, but not necessarily.

This is quite obvious, I’m aware. It’s not a new idea for me either. But as an editor who is forever thinking about and questioning the editorial line of this blog (do we write about this? and what about this? and this? or not?), these two encounters helped me clarify that we do not want to encroach upon the territory of all the great Deaf publications out there, and that Open Ears respectfully remains on the “hearing culture” side of hearing loss.

A Post About Many Things [en]

[fr] Des choses en vrac!

It happened again. As time goes by and things to say pile up, the pile weighs heavy on my fingers and blog posts don’t get written. Been there, done that, will happen again.

First, a heartfelt thanks to all the people who reacted to my post about being single and childless, here and on facebook. Rest assured that I actually rather like the life I have — it’s full of good things. But it’s very different from the one I imagined. I will write more on this, but exactly when and what I am not sure yet. Also, one can grieve not being a mother but not want to adopt or be a single parent. There is a whole spectrum of “child desire”, and it’s not at all as clear-cut as “no way” and “I’ll do anything”. Check out “50 Ways to Not Be a Mother“.

Most of my working hours are devoted to running Open Ears and a series of digital literacy workshops at Sonova. I’m still way behind on my accounting.

Tounsi (and his pal Quintus) went to see an animal behaviour specialist, because I was starting to get really fed up cleaning after Tounsi’s almost daily spraying in the flat (thankfully his pee doesn’t smell too strongly and I’m good at spotting and cleaning). I plan to write a detailed article on the experience in French, but it was fascinating and I regret not going earlier. As of now, spraying is pretty much under control, and I’m in the process of finally chucking and replacing two pieces of furniture which are soiled beyond salvation.

What I learned:

  • outdoor cats can also need stimulation (play, hunting…)
  • even a 20-second “play session” where the cat lifts his head to watch a paper ball but doesn’t chase it can make a difference, if this kind of thing is repeated throughout the day.
  • making cats “work” for their food can be taken much further than feeding balls or mazes: change where the food is all the time (I wouldn’t have dared do that, didn’t know if it was a good idea or not, but it is); hide kibble under upturned yoghurt cups; throw pieces of kibble one by one for the cat to run after (another thing to do “all the time”); use an empty egg-box to make kibble harder to get to; etc. etc.
  • clicker training for things like touching a reluctant cat: my baby steps were way too big and my sessions way too long
  • Feliway spray is way more efficient than the diffusor (at least to stop spraying)
  • cleaning with water (or water and neutral soap) is really not enough, there are products to spray on soiled areas which break down urine molecules (even if you can’t smell anything, the cat can)
  • spraying can simply be a “vicious circle” — it seems to be the case with Tounsi: he sprays in the flat because it’s a habit, and because there are “marking sign-posts” (ie, smell) everywhere

While we’re on the topic of cats, I’m playing cat-rescuer and looking for homes for Capsule and Mystik (together, used to living indoors but that could change) and Erika (has been living outdoors for 5 years but super friendly).

I don’t think I mentioned StartUp podcast or Gimlet Media here yet. Anyway: want great podcasts? Listen to Startup, Reply All, and Mystery Show. And in addition to Invisibilia and those I mention in that article, grab Planet Money (I swear, they make it interesting even for me!), Snap Judgement (great storytelling), and This American Life.

Reading? Spin, Axis, and Vortex, by Robert Charles Wilson.

Something I need to remember to tell people about blogging: write down stuff that’s in your head. It works way better than doing research to write on something you think might be interesting for people.

Procrastinating and generally disorganised, as I am? Two recent articles by James Clear that I like: one on “temptation bundling” to help yourself do stuff while keeping in mind future rewards (delayed gratification, anybody?) and the other on a super simple productivity “method”. I read about it this morning and am going to try it.

Related, but not by Clear: How to Get Yourself to Do Things. Read it, but here’s the takeaway: when you procrastinate, the guilt builds up and you feel worse and worse. But as soon as you start doing it gets better. And so the worst you’ll ever feel about not doing something is just before you start. Understanding this is helping me loads.

Enough for today. More soon, or less soon.

Thanks to Marie-Aude who gave me a nudge to get back to this blog. I’d been in the “omg should write an article” state for weeks, and her little contribution the other day certainly played a role in me putting “write CTTS article” in my list of 6 things for the day. Merci 🙂

Helen Keller Deaf-Blind Awareness Week [en]

As the founding editor of Phonak’s community blog “Open Ears” (now part of “Hearing Like Me“) I contributed a series of articles on hearing loss between 2014 and 2015. Here they are.

Tomorrow marks the 135th anniversary of Helen Keller‘s birth. I remember being fascinated by Helen’s story as a young child, full of wonder at how she managed to learn to communicate although she was deaf and blind. (Thought she was born deaf and blind? Check out the myths.)

More recently, whilst exploring the d/Deaf/HoH world online, both out of interest as a hearing aid user and as “blogger-in-chief” of Open Ears, I came upon postings about Usher Syndrome, a rare progressive disease that affects both sight and hearing. They gave me a touch of the fear one could have about losing sight in addition to hearing, particularly if one uses sign language.

In 1984, President Reagan proclaimed the last week of June “Helen Keller Deaf-Blind Awareness Week” — an occasion to raise awareness about deafblindness and highlight the contributions of those who have this disability. It has since spread to some other anglophone countries.

As my contribution to this awareness week, I’d like to share two videos about young deafblind women with you.

helenkeller-940x492_062015

The first is a documentary produced by and about Brittany, who has been deaf and blind since she was two. She walks us through her life at school and shares her feelings about her disability and relationships with others.

The second is from Molly, who has Usher Syndrome. She has actually set up a charity, the Molly Watt Trust, to advocate and raise awareness about the condition. In her video she tells us about the consequences of being both deaf and blind on her everyday life.

Both are well worth watching and show different faces of deafblindness. There are many others of course, not forgetting those who in old age see their senses fade away to the point where they can no longer make use of them.

What Are These Hearing Loops? [en]

As the founding editor of Phonak’s community blog “Open Ears” (now part of “Hearing Like Me“) I contributed a series of articles on hearing loss between 2014 and 2015. Here they are.

A couple of weeks ago, Angie wrote a post chronicling her repeated failure to find functional loops so she could try out her newly-activated telecoil. I was curious, as I’ve never used a loop myself. I’ve seen the signs, of course: the white ear on blue background with a T next to it. But until my recent last visit at Phonak headquarters, I wasn’t even certain my hearing aids had a telecoil (they do).

It seems I’m not alone in being mystified/uninformed about loops, as the many questions on the Phonak Facebook page testify.

So. What are these hearing loops?

what-are-loops

If you’ve been reading this blog for a while, you might remember me mentioning streamers like the Compilot Air or the M-DEX. What these streamers do is they transmit sound from an audio source (typically, your phone) directly into your hearing aids. Your hearing aids are basically working like “in the ear headphones”.

Induction loops allow the same kind of experience — without the streamer and in a specific place.

Here’s one of the many articles on hearing loops I was reading this morning, perfect if you’re in a geeky state of mind. The loop is actual wiring that produces an electromagnetic field which is “captured” by the telecoil in your hearing aids and transformed into sound.

This means that if you’re at a theatre that is equipped with a loop, you can put your hearing aid on the T-coil programme, and lo and behold, you’ll hear the audio that is playing directly in your hearing aids. Same thing at the till when you’re buying your train ticket — instead of struggling to hear through the glass and the crappy loudspeakers, you can hear the teller directly in your ears.