Post-Accident Packing and Travel Anxiety [en]

I’m on the train to Paris. I’ll be coming back a week on Monday. It’s a comfortable, easy trip. The reason for my travel is I’m attending a two-day course on burnout – part of my training at the Gregory Bateson Institute. I’d planned on postponing this module until next year or the year after, given that my main priority now is building my working capacity back up following last year’s accident. But earlier this year, the whole curriculum was redesigned (it’s a good thing!), and the material on burnout will be incorporated into a longer module which is largely redundant with the courses I’ve already taken. So: now or never.

Following my relapse/brain crash earlier this year, I took the decision in March to pretty much clear out anything that was in my calendar. It was a tough decision, but it was the right one (people who have experience with chronic fatigue will know what I’m talking about). For those few plans I held on to, I « cleared the decks » around them to ensure they would not interfere with getting my work done, and that work would not jeopardise them. This means I took the whole week off for these two days of training, just like I took the whole week off a fortnight ago to go and see Mika live at the Caribana Festival. It worked.

In my pre-accident life, I might have travelled on Monday, attended the training on Tuesday and Wednesday, and travelled home Thursday. The « recovery » version of this is to add at least a day of padding in between training and travel, with nothing planned, so I can rest/stock up on « energy »/recover, and reduce the risk of (for example) travelling on a maxed out brain. I figured I might as well add on a few extra days (particularly as Oscar is not around anymore – something I’m really thankful for to be honest, with the awful heat wave that hit us over the last week), and catch up with a couple of people, if I’m in good enough shape.

This is my fourth « real trip » since my accident. I went to France twice for extended week-ends with family or friends last year. Each time was absolutely exhausting (but nice). Then after Christmas I went to spend some time at the chalet – first time I was going back since my accident – and we know what a disaster that turned out to be. This time, I think I’ve planned and organised things well enough and with a lot of caution.

As I was packing and preparing for departure yesterday, I realised I was really stressed out. More than usual. Packing and preparing to travel has always been stressful for me. It’s not the actual travel or being in a strange place or away from home. Or maybe just a little. What it is mainly is all the executive function acrobatics required in dealing with travel-related logistics:

  • making sure I do the things that need to be done before leaving
  • deciding what to bring with me (this is a huge one)
  • organising cat- and plant-sitting
  • inserting these « unusual activities » into my days at the right time, in the right order, and with enough time to carry them out
  • leaving wherever I’m at to go “somewhere else” – the transition itself.

Putting things in the suitcase is actually a part I like. It’s real-life Tetris: fun. Once I’ve locked the door behind me and am heading out with my luggage, I’m good. But before that, it’s complicated. I have got much better at dealing with it over the years, and with the clearer view on my executive function challenges that my ADHD diagnosis brought me a few years ago (and meds!) it’s even better.

I don’t have a very clear memory of how preparation for my two France trips went last year (only that I overpacked, a sign that making decisions regarding what to take or not was difficult, so in doubt, pack more). But I do know that packing for the chalet in December was a nightmare.

OK, I had already « crashed » during the previous week, but I’d taken rest to recover and felt functional enough to tackle it. And yes, it was also the first time back to the chalet since my accident, but I was really looking forward to heading back. I was aware there was maybe a little (normal) underlying apprehension that I might not be perceiving.

What apprehension I could feel was not about going to the chalet, but about the possibility of an unexpected emotional reaction to being there again. It was the same thing when I went back on the ski slopes: not scared of skiing, just worried I might have misjudged my readiness and have some kind of PTSD-like reaction to being back on my skis or where the accident took place. Nothing like that happened, by the way. Everything was fine.

This illustrates where most of my post-accident anxiety lies. I am normally pretty good, in general, in predicting how I’ll react, what will be challenging, what I can and can’t deal with. I know myself well, including my biases, and of course I know that when you expect something to do this way or that, it does have an influence on the outcome – I do my best to correct for that. Since my accident however, I have been blindsided by my brain more times than I can count. At times I feel like I do not know myself anymore, though of course I’m still me and very much feel me, but when it comes to “what I can take”, whether mentally, physically or emotionally, I’ve had a lot of bad surprises.

I am repeatedly finding myself in the situations where my brain does not deliver in the way I expect it to, and where I misjudge what I’m able to do. In my accident-recovery-life, the consequences of these prediction errors are swift: I crash. I don’t know if it hits everybody this hard, but for me in any case, it’s pretty traumatising to have my brain brutally and unexpectedly go on strike like that. Both the “brain not working” and the “didn’t see that coming” aspects are really scary.

So now, as time goes on and my recovery stretches out way longer than I initially imagined, as the clock of certain administrative deadlines regarding my return to full work capacity start audibly ticking, as I fail again and again to know my fluctuating limits, I can feel my underlying confidence in my abilities and self-awareness slowly erode, leaving place to self-doubt and increased anxiety about dealing with life and the world. It sucks: the anxiety is not crippling, it’s just a nuisance and an energy-drain at this stage, but I can see the process and the slope I’m on, and I do not like it one bit. Breathe. Relax. Deal with today. Be patient. Hang in there. Keep at it. Trust the recovery process. All this works, and I don’t feel in danger, but it’s more and more work to not let myself be dragged down.

Right. So there’s that. My trust in my ability to manage myself and deal with life is weaker than it was. So my baseline anxiety is higher, my executive function is struggling more, and I tire quickly. But as I was walking to my neighbourhood station to catch the local train a few hours ago, I understood that something else was probably coming into play in terms of post-accident travel and packing anxiety.

You see, my accident happened on the very day I travelled to the chalet for my holidays. I hadn’t been there for a while, I’d actually emptied the chalet of all my stuff and Oscar’s when I had last departed, so it was already an “increased stress” packing and travel operation. Nothing disastrous, still quite within the realm of ordinary, but not a walk in the park.

I got to the chalet (later than I had intended), got Oscar settled, dumped my unopened luggage in a corner and headed off immediately to get a couple of hours of skiing in on this first day. When I fell, I was heading back to unpack and enjoy the evening. I didn’t make it back: I spent the night at the hospital, in the haze and stress you can imagine, worried about my shoulder and my old diabetic cat who was alone at the chalet, trying to make decisions and organise logistics (How can I get back to the chalet? Should I go back to Lausanne? Who has a good shoulder specialist? Who can help me with my car as I can’t drive? That’s just the start of them). The next day a friend picked me up at the hospital and drove me back to the chalet, and another one came to help me empty the chalet and drive me back home. It was horribly stressful. I was in pain, I was freaked out, and instead of resting my concussed brain I was in full crisis management mode. It didn’t get better over the next two weeks.

I wouldn’t be surprised if my accident taking place just on the heels of travelling to the chalet didn’t add an extra layer of “negative association” to a transition that was never that easy for me to begin with.

Say you have a pet who always stressed out when heading to the vet’s. You do stuff to make it smoother: stay calm yourself, get your pet used to the carrier or the car, add treats, maybe a mild sedative, maintain usual routines as much as possible… It’s not great, but it’s not a disaster anymore, it’s manageable. And then, one fateful vet visit, something “bad” happens there. Not on purpose, of course. An exam that’s longer or more intrusive. A different vet. A loud noise at the wrong time. The pet freaks out, has a really bad experience.

Well, chances are that the next time you prepare to take your pet to the vet, it’s going to be more complicated.

That’s how I feel it’s playing out for me. I’m not actively scared of travelling or having an accident. But I’m clearly more stressed when preparing to travel, and some part of that could very well be the proximity of my accident to travel which has left a negative association. Not PTSD of course, but maybe on that continuum, probably closer to normal than pathological.

In 2019 I had a bad car accident (which resulted in surgery on my right wrist six months later). I was in a roundabout when a car entering it hit the back of my car right from the side. I didn’t see anything – there was a loud bang and choc and suddenly I was heading off the road right onto a big metal signpost solidly anchored in the ground. The car flattened it, ripped it out of the ground, and in turn it bent the car frame into a right angle. The car was totalled, we were lucky. I drove quickly afterwards with a rental, without issues. I’ve always liked driving and never been afraid at the wheel. But for months afterwards I felt a tiny surge of apprehension when going through roundabouts (it even still happens sometimes now when I’m on the precise spot of the accident). Nothing huge, but a clear signal – and this was on the backdrop of an activity (driving) that was very positive in terms of associations, compared to packing/traveling which was already fraught.

We’ll see how things play out over the next months and years. But I think I’ve put my finger on something that wasn’t on my radar. You know how sometimes you have an insight that just feels like it’s the missing piece? That’s what this feels like. In my experience, it’s often enough for me to just understand this kind of mechanism to defuse it. Like when I understood that a huge amount of my anxiety over Oscar’s impending death was the possible consequences this loss would have on my recovery timeline, given the post-accident uncharted territory I described higher up when it comes to my ability to “deal with life” in these times.

I typed this on my phone, with an external keyboard. Pretty comfortable I have to say, but not quite enough that I feel like adding links (there would be a good handful to add). I’d also like to say more regarding continuums between normal and pathological, and also on the somewhat related question of normality: when it comes to living beings, normal/average is a mathematical abstraction (or a bell curve), which should make us think real hard about how we frame certain realities (e.g. “neurodiversity”).

Anyway, I’m going to leave things there. I’m starting to feel a bit of motion-sickness and I feel just about ready for a nap in my comfy train seat.

The Danger of Backup Plans. And Choice. [en]

[fr] Avoir un plan B nous rassure, mais nous empêche aussi souvent de mettre autant d'énergie qu'il le faudrait dans notre plan A. Parfois, ne pas avoir le choix est une bonne chose.

Being rather pessimistic by nature and risk-averse, I love my backup plans. I really like knowing what I’ll do “if something goes wrong”.

The only way to go is forward.
No plan B here!
Photo by Anita Bora, taken on one of our hikes a couple of years ago.

These last ten years as a self-employed professional are no exception. In the back of my mind I’ve always “known” that, if things go awry:

  • I have savings I can dip into
  • I can borrow money
  • I can always “find a job”
  • maybe I’ll shack up with somebody who has a stable situation and there won’t be so much pressure on my income anymore.

I have always had the nagging feeling that these backup plans kept me from giving my fullest to the current one, the one I was actually living. Why struggle and work like crazy when it might not be necessary?

Like our modern western world, I like the idea that we are responsible, that the way we lead our life is through choices. We always have a choice. I’ve been brought up to believe that we always choose, even when we think we don’t. I don’t think it was drilled into me on purpose — it just reflects the ambient beliefs of our time. If you say you don’t have a choice, you’re in some ways painting yourself as a hapless victim with less agency than you actually have.

But reality is more complex than that, as all we women of the 60s and 70s who ended up not having children due to the circumstances of life rather than our desire not to have any very well know. (I hope.) Not everything that happens to you is a choice.

Looking at the future (and present) rather than the past, absence of choice can actually be a good thing. Absence of a plan B. A series of recent discussions brought that to light for me: professionally, there isn’t really a plan B for me. In the long run, I need to stay self-employed (more about this in another post at some point). And so I have to make my business more successful than in the past (not just by wishful thinking, there is a lot of work to be done, actually — more about that in another post).

Saying “I have to do this” is, again, something I’ve been taught to avoid. Because it makes one powerless to have to do something, rather than want, choose, decide. But an episode of the podcast Hidden Brain presents research that points to another phenomenon: if we have a fallback plan, our motivation or drive to make our main plan succeed diminishes.

Not having a choice can actually be an advantage!

This might be one reason I like action/thriller movies, in which characters very often have no choice but to do what they are doing. Trying to stay alive or save the world definitely gives one a sense of purpose, something I sometimes feel I am lacking in my life.

There could also be a link to my love of physical activities like skiing, sailing, judo, kitesurfing, and even cycling and driving: when you’re moving or in action, you have to do what you have to do, or you can hurt or even kill yourself. In that moment, there is no backup plan. Come to think of it, that is true of public speaking too, though there is of course no physical danger there.

When Do You Wear or Remove Your Hearing Aids? [en]

As the founding editor of Phonak’s community blog “Open Ears” (now part of “Hearing Like Me“) I contributed a series of articles on hearing loss between 2014 and 2015. Here they are.

As somebody with mild/medium hearing loss, I guess wearing hearing aids are more of a choice than a necessity for me. I mean, I functioned without them for nearly 40 years. Today I wouldn’t give them up for anything in the world, of course, and I really prefer wearing them for anything resembling human interaction. But I can get by without. (An audiologist I had a chat with one day told me I’d be surprised at how people with much more hearing loss than me “get by just fine” without aids. Anyway.)

So, when do I wear them, when do I remove them? As a general rule, I wear them when I leave the house. (My cats aren’t all that talkative.) I remove them when I get home. Since I got my V90 aids though, I often forget to remove them when I get home.

I don’t wear my hearing aids to watch TV.

skiing-022515-940x492

I’ve been watching TV so long with headphones that having “ambient” sound on actually makes me self-conscious about bothering my neighbours with it (this is Switzerland). I used to always remove them to listen to music or podcasts. Now that I have the ComPilot Air II I sometimes keep them in (more for podcasts than music, with open tips there are frequencies missing for the music). If I’m travelling or wandering around on my own and not really expecting to interact with people I might take them out, too.

At judo training, I usually keep them in for warm-up and maybe the first rounds of “light” practice. Then I remove them so that I don’t have to worry about paying attention to what’s going on around my ears.

For skiing, I keep them in, despite the helmet. With my old Widex aids I’d given up on that (they really didn’t cope well with the helmet), but my current ones are fine. When driving, I sometimes wear them, sometimes not (depends if I was wearing them just before taking the wheel or not, I guess).

I also ended up removing my hearing aids once at a very noisy party. Even with the highest “speech in noise” setting, I actually managed better without them. But that was really an exceptional situation.

What about you? Do you put them in first thing in the morning and take them out last thing at night, or are you like me, sometimes in, sometimes out? And when? I’m curious to hear how other people do this. I suspect our wearing vs. not-wearing habits are also linked to how much hearing loss we have.

Le matériel de ski, c'est important [fr]

[en] I had no idea skiing gear could make such a difference. Between an old pair of skis I was lent and the ones I ended up buying, I went from despair, on the verge of giving up skiing ("I waited too long, I'm too old for this sh*t"), to feeling 19 again, whizzing down the slopes without ever stopping.

…ou comment j’ai dépensé 800CHF pour avoir 20 ans de moins sur les pistes.

Cet hiver, au lieu d’aller en Inde, j’ai décidé de prendre un abonnement de saison et de profiter du chalet pour me remettre au ski. On m’a mise sur les lattes quand j’étais haute comme trois pommes, et jusqu’à mes vingt ans environ c’était ski tout l’hiver, chaque hiver, chaque week-end, toutes les vacances.

Ces presque vingt dernières années, c’est à peine si j’ai mis un jour par an en moyenne les pieds sur les pistes.

Mon projet était de louer du matériel à l’année, vu que je n’avais plus rien. L’amie de mon père m’a prêté son vieux matériel, au hasard (des skis du début du carving), et je me suis dit que j’allais d’abord essayer ça pour voir. Inutile de payer si c’est pas nécessaire!

Première journée: quel enfer. J’avais mal partout. Aux chevilles, aux genoux. Je n’arrivais pas à contrôler mes skis. Ça partait dans tous les sens. Je devais tout le temps faire des pauses, moi qui skiais avant à toute vitesse de l’ouverture à la fermeture des pistes. Déprimant. “Ma vieille, je me suis dit, tu as trop attendu pour reprendre le ski.”

Le lendemain, j’y retourne quand même, avant de déclarer forfait après deux descentes tellement j’avais mal et pas de plaisir. J’étais vraiment dépitée. Je pensais à mon abonnement de saison (c’est pas donné) et je me demandais comment j’allais bien pouvoir l’amortir dans des conditions pareilles.

Après un jour pour me remettre, je décide de mettre en branle le plan “location”. Je prends une paire de skis (+ chaussures) pour la journée, avec l’idée de les garder pour la saison si ça se passe bien.

Quelle révélation! En changeant de skis, j’ai perdu 10 ans! Je peux à nouveau prendre un peu de vitesse, je tourne où et quand je veux, je fais des descentes sans m’arrêter. Je jubile!

De retour au magasin en fin de journée, je déclare haut et fort que je garde ce matériel pour la saison. Mais le gérant du magasin ne l’entend pas de cette oreille. “Vous ne voulez pas plutôt acheter?” Moi: non, budget, machin (j’avais quand même regardé, et j’avais été un peu estomaquée de réaliser qu’une paire de skis neufs ça allait chercher dans les 8-900CHF). Il me propose ceux que j’ai essayés pour 400CHF — et là, il a mon attention. On commence à parler, il me montre ce qu’il a, on parle encore (je n’ai franchement pas la moindre idée comment on peut bien choisir une paire de skis), il m’explique qu’avec un ski plus dur on se fatigue moins à la longue, j’hésite, je réfléchis, on discute encore, et il me dit qu’il a justement une paire de “skis test” pour un des modèles qui me conviendraient bien.

Pas grand chose à perdre, je me dis. Essayons, et je verrai bien si ça vaut la peine.

Le lendemain, sur les pistes, nouvelle révélation! J’ai perdu 10 ans de plus! Je skie comme à l’époque! Je n’en reviens pas. Les skis tiennent bien la vitesse, je peux carver comme je veux (même si j’ai arrêter de skier régulièrement avant l’apparition du carving, j’ai fait beaucoup de snowboard et vite pigé la technique), ils correspondent vraiment bien à mon style de descente.

Il me reste un doute: et si c’était simplement la forme qui revenait? Je reprends les skis de la veille pour une dernière descente: alors qu’ils m’avaient tant plu le jour d’avant, aujourd’hui ils flottaient, partaient dans toutes les directions, et réagissaient comme un plongeoir réglé sur la position la plus molle.

Ma décision est prise: je vais casser la tirelire pour avoir 19 ans de nouveau quand je skie.

Nouveaux skis Salomon 24HRS

Cette aventure a été une grande révélation pour moi: jamais je n’aurais imaginé que le matériel pouvait autant influencer l’expérience du ski. Je suis de ceux qui pensent qu’il est possible de faire de magnifiques photos avec un appareil jetable, et qu’on peut faire de délicieux gâteaux dans un vieux four. Malgré mon job dans la technologie, je ne suis pas une adepte du dernier cri. Je fonctionne à la récup, à l’entrée de gamme, au deuxième main. Certes, je sais que la qualité peut valoir la peine, mais jamais je n’aurais pensé qu’une paire de skis pouvait faire la différence entre être découragée de skier et retrouver mes vingt ans.

Le gérant m’a même raconté qu’il y a des gens qui arrêtent de skier parce qu’ils n’arrivent plus. Ils prennent sur eux, pensent qu’ils sont trop vieux, plus assez en forme — alors que c’est leur matériel qui a dépassé la date limite. Une paire de skis, ça dure 5 ans environ, peut-être un ou deux ans de plus si on achète du bon matériel.

Alors mon conseil: vos skis qui trainent à la cave depuis une décennie, oubliez les (déchetterie!), et louez pour une demi-journée du matériel récent, juste histoire de voir la différence.

A bientôt sur les pistes!

 

The Simple Life [en]

I’ve been at the chalet since December 29th. I like it here. I’ve been “down” 5 times: once to see a new client in Zurich (more about that in the weeks to come), once to bring a car back to Lausanne, once to get my nails done, once to get an MRI done (wrist, nothing too bad), and once for a foundation board meeting.

Chalet et Grand Muveran

My life is simple here. Few possessions, few activities, few people, few responsibilities. The Paradox of Choice in reverse. As I’ve often noticed in the past, freedom is in fact in all that you can’t do.

That’s why people go away on holidays. There’s stuff to do on vacation, of course, but there is so much more from the daily grind that you can’t do.

Here I eat, take care of the cats, go skiing, buy food, fool around on the computer with my slow 3G connection (when I’m lucky, otherwise it’s Edge, or nothing), do some work, sleep.

But this state does not last. I’m already starting to make connections here. I’m starting to know people. I go to the café in the village which has great chocolate cake and wifi. I’ve been through this when I lived in India: within a few months, I’d reconstructed for myself a life full of things to do, of people, of meetings, and activities. That’s how I am — I cannot remain a hermit for very long.

At the end of the week I’m going back to my city life. I’ll miss how easy it is here to talk to people. I’m not from here, but I feel like I fit in. I like the outdoors. I like my clothes comfortable and practical before pretty. I don’t need a huge variety of restaurants, shops, night-clubs, or theatres to make me happy.

I know I’ve already mentioned it, but my life slows down when I come here. Even with an internet connection. I try to bring this slowness back into my life in Lausanne, but it’s difficult. Specially as things will be a rush next week: I’m hosting a WordPress meetup workshop on Tuesday evening, then there is Lift, then I have a friend visiting, then I’m coming back up here 🙂 for a few days. The week after that will see me back in Zurich…

As I write this, maybe what I get here (or elsewhere on holiday) that is hard to get in Lausanne is long stretches of time with no outside commitments. No meetings, no appointments, no travel. Just weeks ahead with nothing else to do but live and ski.